Normal labs ,severe pain

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I suffer everyday with pain I'm most joints this week my back right hip are either grinding or piping this is very painful I feel like my body is giving out daily.....my left buttock/leg the muscle feels as if I tore something followed by a painful burning sensation my test are NORMAL for R.A-O.A thyroid levels are normal my hormones are unbalanced I'm sure they are since I had a bilateral salpingectomy oophorectomy but let me mention I have 3 bulging disc in my cervical spine but mri a yr ago showed mild degenerative disease can any she'd some light I've gained 50 lbs depression is so bad I know there is something very wrong also my hands tingle become painfully Numb all the time day and night this is effecting my work my life HELP ME THANK YOU

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  • Posted

    Hello 

    Sorry you feel so poorly.

    Your thyroid may be normal, but your parathyroid glands may not.  I would advise you to get your calcium and parathyroid hormone (PTH) tested - it is possible you have a disease callled Primary Hyperparathyroidism.  I would recommend you look this up (a good place is the web site of the famous parathyroid centre in Tampa, Florida and see if any of it fits your symptoms.  There are 21 symptoms to this disease and it sounds like you have at least some of them.  It would be a good place to start if nothing else, it's something that often is misdiagnosed.  

    Hope you feel better soon.  Are you in the US?

    Kind regards. 

    Rosemary

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    • Posted

      Thank you rosemary calcium? Twice my Dr has put me on 50,000 units of vitD but my D is still very low I'm not a milk person at all could this be something that is aoart b of what your saying may be wrong

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    • Posted

      Sorry you are feeling so bad.  Like Rosemary said, sounds like primary hyperparathryoidism, particularly if you say your vitamin D is low.  If it is that, the pain is caused because of an adenoma on one of the parathyroid glands which then creates more of the parathyroid hormone and then that leeches calcium from the bones into the bloodstream.

      ?We have a group on Facebook run by a sufferer of 7 years and being ignored by GP's.  Ironically, we recently had a lady join us who lives in the U.K. but was on holiday in Florida and actually had an adenoma half the size of a banana removed.  Dr Norman did the op and said left any longer and it would have killed her.  She was so elated half the op, she phoned home and told her family to buy a lottery ticket and low and behold they won the £61 million.   There are around seven hundred of us all having a moan and getting advice on the group and members are from the u.s., australia, scandanavia and of course the u.k.   Just write a message to the group and say Elaine sent you.  It takes a few days to sift through stuff because we had a nutjob trying to sabotage the group which is private and we wanted to keep it that way.  Its " Hyperparathyroid UK Action4Change "

      Regards

      ?Elaine

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    • Posted

      Yes, if you have a high calcium level your Vit D is very likely to be low because with Primary Hyperparathyroidism, the body deliberately keeps the vit D low as a protective measure.  Just because you don't drink milk, your calcium should still be in the normal tight range.  Other foods such as cheese and broccoli contain calcium.  If the level of calcium in your blood is higher than it should be, the body will aim to keep the Vit D low as a protective measure.  Do you feel worse when you take high doses of Vit D?  If you do have high calcium, you should not take Vit D (or extra calcium) because this will increase your risk of a stroke and heart attack and will make you feel worse.  It's always a good idea just to get your calcium checked because if it's too high it can mimic the symtoms of other diseases.  

      Depression-type symptoms is also a very common symptom of Primary Hyperparathyroidism.   

      Hope this helps.

       

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    • Posted

      I can't thank you enough I see my Dr one week from tomorrow I do feel worse after my vitD pill I can't believe this can occur I'm so very grateful I'd almost given up it seems Dr's aren't up on there skill when it comes to this health issue irs been blamed on my hysterectomy, getting older ,genetics simply because labs came back normal I hope this is what's troubling me I'm not sounding like a weirdo but to actually be diagnosed is better than not knowing what's next so once again I'm forever grateful if it's not this I'm sure it's a step in the right direction I desperately want a quality of life and for the moment it's nit the pain is debilitating for the most part could you please tell me again what test I need to have?

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    • Posted

      Elaine I'm so very grateful I didn't know this could in fact threat in my life I cried this morning telling my love that I want the aches n pains to stop for my age I'm getting around like I'm 90+years old I'm honored to try to join the group it's been a very tough road giving up is easy when you can't understand why results come back normal but the pain is very much there I asked and doubted my sanity at one point because I didn't understand and I really still don't know why this may be happening and what to look for if this is in fact what is wrong

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    • Posted

      Hi Tracy really sorry you are feeling that bad. I've told Sallie to look out for you joining. By the way we are lucky enough to have one of the lady surgeons from the parathyroid centre in Florida on our group. She very kindly did a gruelling whole evening of questions and answers for members. Can you imagine one of our surgeons giving up their time. Take care

      Elaine

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    • Posted

      Hi Tracy really sorry you are feeling that bad. I've told Sallie to look out for you joining. By the way we are lucky enough to have one of the lady surgeons from the parathyroid centre in Florida on our group. She very kindly did a gruelling whole evening of questions and answers for members. Can you imagine one of our surgeons giving up their time. Take care

      Elaine

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    • Posted

      Hi Tracy really sorry you are feeling that bad. I've told Sallie to look out for you joining. By the way we are lucky enough to have one of the lady surgeons from the parathyroid centre in Florida on our group. She very kindly did a gruelling whole evening of questions and answers for members. Can you imagine one of our surgeons giving up their time. Take care

      Elaine

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    • Posted

      Hi Tracy really sorry you are feeling that bad. I've told Sallie to look out for you joining. By the way we are lucky enough to have one of the lady surgeons from the parathyroid centre in Florida on our group. She very kindly did a gruelling whole evening of questions and answers for members. Can you imagine one of our surgeons giving up their time. Take care

      Elaine

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    • Posted

      Hi Tracy really sorry you are feeling that bad. I've told Sallie to look out for you joining. By the way we are lucky enough to have one of the lady surgeons from the parathyroid centre in Florida on our group. She very kindly did a gruelling whole evening of questions and answers for members. Can you imagine one of our surgeons giving up their time. Take care

      Elaine

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    • Posted

      Hi Tracy really sorry you are feeling that bad. I've told Sallie to look out for you joining. By the way we are lucky enough to have one of the lady surgeons from the parathyroid centre in Florida on our group. She very kindly did a gruelling whole evening of questions and answers for members. Can you imagine one of our surgeons giving up their time. Take care

      Elaine

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  • Posted

    So it wasn't a good day I felt heartburn for months but its worse today my tummy swells so mych I can't stand it especially if I eat anything Red especially tomatoe based sauces but my big complaint are my hands the last few days there more numb than usual and the part of my left shoulder continues to be numb but is tender to the touch caught a headache today I'm having a Birthday Next Week and I'm miserable my Dr is on vaca I'm itching to give him a earfull what can I do for the numbness and pain thank you

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