Normal testing and still have bad gallbladder/pain?

Posted , 58 users are following.

Is it possible to have all normal testing and still have a bad gallbladder? 

Since the 1st week of sept I have been suffering from RUQ pain, nausea after meals, sometimes nausea out of the blue, pain in my right shoulder blade, fatigue, lack to no energy level, 12 lbs weight loss, pain in my right shoulder neck area, mix between constipation and diarrhea but mostly constipation and heartburn! The pain is constant and never goes away. 

All of my testing keeps coming back normal. Ultrasound of the gallbladder, Hida scan (my result was 48%), Ct Scan, celiac biopsy, h.pylori, other blood work( amylase/lipase normal), endoscopy, MRI, ct of the head, pelvic ultrasound! We have also had a 2nd opinion with a GI Dr and established with a new GP and spoke to a surgeon (we have another appt 11/12)! 

All testing keeps coming back NORMAL!!! (Which is good) 

Can all these test still come back normal and you still have a bad gallbladder? 

Has this ever happen to anyone? 

Certainly I'm not the only one this is happened too! Any help is welcomed! 

From the USA

Thanks for reading

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  • Posted

    Yes it is i have had my gallbladder removed for almost 2 weeks now but yes all my blood work etc came back normal you need a hidascan to actually check your gallbladder 
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    • Posted

      Thanks for responding! Hopefully you are recovering well and feeling better! 

        I did have a hida scan done about a month ago. My result was 48%!!! 

        How long did you have your symptoms for? Did your dr give you a 50/50 chance b/c all your testing was coming back normal? 

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    • Posted

      My gallbladder wasn't functional at all but only the hidascan helped me granted i had to fight 4 different hospitals because my other test came back normal when the charity hospital finally did my surgery turned out my gallbladder was huge larger than my liver but the hospitals didnt like my insurance so they wouldn't do sh*t it took me a month and losing 40 lbs in a month upper and lower gi hidascan etc... i do have an ulcer and horrible acid reflux as well but i had to fight for my health it almost killed me really they dont like to do the surgery if they can find an alternative reason for your symptoms you have to push im still having problems after the surgery so weigh your options heavily because they don't tell you how much you go through after
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  • Posted

    Update: I had my gallbladder removed in Dec 2014. It took about 4-6 months for everything to feel better and get back to normal! To all out there please know it is possible to keep having normal results and still have gallbladder symptoms.
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    • Posted

      I too have been going through all of this for almost 4 years.  Ultrasound, 2 rounds of blood tests, CT scan, colonoscopy, endoscopy, and HIDA scan (89%).  Everything normal.  I'm about to take a MRI but it's getting very frustrating.  What finally prompted you to do that surgery?  Also, now that you feel better is that particular pain gone?  Thank you.  
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    • Posted

      Ibow,

      I went through a month of normal tests. I had a normal ultrasound, blood work, and HIDA scan. Thank God for my amazing nurse practitioner who had her gallbladder removed and still was convinced it was my gallbladder. I was diagnosed with non-alcoholic fatty liver disease, but that generally doesn't cause pain and it was an accidental find. One day I went to the ER because I thought I was having a heart attack and the ER doctor said he also thought it was my gallbladder dispite negative tests. I ended up going home and making an appointment with the surgeon. I first met with my nurse practitioner before I went to the surgeon and she spoke with the surgeon and wrote the surgeon a letter as well. I saw the surgeon and he was willing to take my gallbladder out as long as I got an upper endoscopy done to rule out H. Pylori, stomach ulcers, ect. It all came back normal and my GI doctor was also convinced it was my gallbladder. My GI doctor said all my symptoms screamed gallbladder. My surgeon wanted to make sure I knew the risks of surgery and this may not fix my problem. I went in for surgery on 06/30/17 and my gallbladder had adhesions all over it and was inflammed completely. My pain is completely gone. You just need to follow your gut and have a good medical team behind you. Keep the faith and know it will get better and be persistent.

      VGJCM

      USA

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    • Posted

      Hope you catch this.  12-23-2017.  I know Now there’s more to this.  Been going through same as you.  I have heard the w/in Normal Range sooo much.  I have No One who Will Help Me. I am waiting to see my 4th GI Dr.  I am sure I am going to die. Gone on way too long.  Glad you had Great Med Support.  I am not being overly Dramatic.  I have been Chronically I’ll over 25yrs.  I know when something is not Right.  I don’t know what I can do.  Just waiting for the next attack, the last one was bad. Beyond Me How Drs Just seem to want you to Suffer & Most likely the outcome be Death.

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    • Posted

      Hello, 

      Thank you so much for sharing your experience, I am in the exact same situation and feel like everyone thinks I’m crazy. I’ve had all of the same tests and then some all showing normal. But this pain is far from normal, did you also have excruciating back pain with your symptoms? I am 40 years old and in good health otherwise this has caught me completely off guard. I have finally (with the help of my amazing nurse practitioner) found a surgeon who says that although all of my tests show normal my symptoms + family history, all point to gallbladder. I’m curious how your recovery has been since your surgery was so recent? Any feedback is greatly appreciated as I am about to schedule my surgery, all the best to your good health!

      Sarah43191

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  • Posted

    Yes, I had the exact thing happen to me. It took 9 months before I was referred to a general surgeon who agreed to do exploratory surgery .  When inside he found my gall bladder to be covered in scar tissue from chronic inflammation, cholecystitis, it was removed.  A few hours after being home from the out patient surgery I had a new pain, similar to pre surgery pain but different.  I've had it ever since. I was diagnosed with type 3 Spinchter of oddi dysfunction just last week after 10 months of more doctors and tests that come back normal.  Now, they say there is nothing they can do, I have to live this way.  Well, it's no life, that's for sure. I suggest you do everything to SAVE your gall bladder. Detox, do flushes whatever it takes but don't buy into the hooey that you "don't need" your gall bladder. God gave it to us for a reason, and I'm living proof that things don't work right without it.  It can heal if given the right nutrients and remove the toxins that are causing it to malfunction.  I wish I had learned this before, I would not have had the removal.  Good luck. 
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  • Posted

    I am refreshing my gallbladder discussion. This Dec 2016 I will be 2 years post having my gallbladder removed. I had all normal testing with extreme pain.

    Everything is back to normal...

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    • Posted

      Thanks for starting this thread and fir your detailed posts. I'm in a similar situation to you pre-surgery - CT, US, endoscope and xray clear. Hida at 67 percent. Keep getting extreme upper rq pain and was hospitalized for suspected pancreatitis last week. My usysl surgeon was on leave so I saw another one and a GI - both suspected gall-bladder at first given my classic symptoms - yet are now saying taking out GB won't help. Anyway, great to hear you're going so well. It gives me hope! Trying to get an appointment soon with my usual surgeon (in Australia).

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    • Posted

      I've been reading this as the closest to my situation. I too have had bloods, ultrasound, CT scan which have come back normal. My consultant now thinks that my gallbladder isn't working properly so I've got to have a HIDA scan and a MRCP scan in the next few weeks. I've been in pain for 5 months which hasn't been long compared to alot of you on this forum. Most of my pain seems to be in my back and shoulder blades and is constant and gets worse after eating. Every so often the pain seems to moves up a stage and starts to feel worse than before. Glad it all worked out for you.

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    • Posted

      I went through a month of normal tests. I had a normal ultrasound, blood work, and HIDA scan. Thank God for my amazing nurse practitioner who had her gallbladder removed and still was convinced it was my gallbladder. I was diagnosed with non-alcoholic fatty liver disease, but that generally doesn't cause pain and it was an accidental find. One day I went to the ER because I thought I was having a heart attack and the ER doctor said he also thought it was my gallbladder dispite negative tests. I ended up going home and making an appointment with the surgeon. I first met with my nurse practitioner before I went to the surgeon and she spoke with the surgeon and wrote the surgeon a letter as well. I saw the surgeon and he was willing to take my gallbladder out as long as I got an upper endoscopy done to rule out H. Pylori, stomach ulcers, ect. It all came back normal and my GI doctor was also convinced it was my gallbladder. My GI doctor said all my symptoms screamed gallbladder. My surgeon wanted to make sure I knew the risks of surgery and this may not fix my problem. I went in for surgery on 06/30/17 and my gallbladder had adhesions all over it and was inflammed completely. My pain is completely gone. You just need to follow your gut and have a good medical team behind you. Keep the faith and know it will get better and be persistent.

      VGJCM

      USA

      Report Reply

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