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Hi and Happy New Year
I have some questions for anyone with MAV/VM. Ive had this fir 2.5 yrs. I’ve tried a few meds and the newest is nortriptyline 10mgs fur about 3.5 weeks. My sensations of this disorder are feeling like I’m floating in a raft on small waves moving up and down, leaning feeling, twirling like I’m on a fair ride about to spin but don’t, when looking at things like standing in my kitchen it looks like the room is moving like when you look at the horizon in a boat, 95% ofvthis I feel when sitting, walking and standing still, when I lay down it’s better. I feel these sensations through my entire body not just in the head. I also get headaches, neck pain, shoukder right ness all these are better with the propranolol I take twice a day. First I’m curious if your taking nortriptyline when you first started did your dizziness get worse for a few days or weeks? How ofwten did you increase the dose until you finally got to the right dose? With each increase did your sensations intensify? I feel mine intensified for a week when I started this. Did you have days here and there when you first started that where in but then it came back on some days? How long where you on this before you started to see a difference? I’ve been 3 weeks and have had a few days of better but then get hit again with bad, so I’m wondering does this take 8-12 weeks before it really dies anything? I don’t know when to increase my doc didn’t explain it all and I’ve never done this before. Any help would be appreciated
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