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Nose bleed and sore throat.....

Posted , 7 users are following.

michelle65680
michelle65680

Im on my day 3 of starting MTX . The sickness had started to wear of yesterday evening which pleased me as i could eat. But this morning i have a sore throat and had a nose bleed and the sick feeling has come back and seems worse..Overall I feel worse if anything. Is this normal..Trying to work with these symtems is so hard how do you all cope or am I a lightweight in this? 

1 like, 12 replies

12 Replies

  • shirlee86000
    shirlee86000 michelle65680

    Posted

    Wow poor you that's not good, I would ring your rheumatology dept and ask for advice I think, this medication can be amazing for some people and not others, I can't take it as my body doesn't like it at all

  • sukes
    sukes michelle65680

    Posted

    Oh poor you Michelle,

    unfortuntely this medication suits some people, but has serious side effects on others and it sounds as if you are one of those.  I havent taken MTX yet, but was taking hydroxychloroquine and managed over 6 weeks, but then had to stop it as I was feeling so ill.

    I  think you need to contact the rheumatology department to let them know what is happening, which is what I did.  I hope you feel better soon. x

     

  • martin_F
    martin_F michelle65680

    Posted

    I suggest you contact your GP or the Rheumatology department this sounds serious enough side effect, sore throat in listed needs reporting, I took Methotrexate only lasted a week and had to go to A and E terrible stomach cramps nearly passed out and made my joints worse, and made feel very low.
  • sherry29159
    sherry29159 michelle65680

    Posted

    Well I am amazed because I am on maximum dose 22.5mg and have never had a bad reaction other than thinning hair and tiredness. But I am really lucky as I know many have rotten side effects. I assume you take folic acid 6 days a week as that is meant to help with side effects.

    • shirlee86000
      shirlee86000 sherry29159

      Posted

      Hi sherry

      I was just wondering why some people take folks acid every day apart from methotrexate day and Luke myself I took it once a week 5mg, does anyone know why?

    • steelctygirl
      steelctygirl shirlee86000

      Posted

      Hi shirker, I am on methotrexate & occasionally prednisone. I also take folic acid. I believe the folic acid is to prevent sores in the mouth & throat.

    • sherry29159
      sherry29159 shirlee86000

      Posted

      Hi Shirlee

      Methotrexate is taken once a week on same day. We take folic acid on the other 6 days and never on day we take meth. This is because folic acid can cause the meth to not work so well if taken same day. We take folic acid for various reasons but mainly because it can lessen the bad side effects of the methotrexate. So its important you take them. Hope I have explained myself well. X

    • shirlee86000
      shirlee86000 sherry29159

      Posted

      Thank you for replying it's just that I took my methotrexate on a Wednesday (6) and one 5mg folic acid on a Saturday it's just that it seems some people take folic acid 6 days a week I was just wondering why they had all those and I only had one

    • sherry29159
      sherry29159 shirlee86000

      Posted

      Well it may be related to the dose of meth you are on but I would double check as folic acid is generally given more often than you are on. I have never taken 5mg only once a week even when I was on low dose. Check it out.
    • shirlee86000
      shirlee86000 sherry29159

      Posted

      Ok I will, I have been on methotrexate for a couple of months and the side effects are indeed proving too much, my hairs thinning, lumps and bumps on the palms of my hands have appeared recently and to top it off I had a phone call from the hospital on Friday to say I have to come off it as my enzymes are up in my liver, such scarey stuff, I asked where do I go from here and she says they will put me on a lower dose when my liver back to normal, I don't think I want it anymore to be honest X god I hate this disease, I have had no pain or symptoms of RA in almost 4 months now but I did have a steroid injection on diagnosis so that should be wearing off now

  • Gloria814
    Gloria814 michelle65680

    Posted

    Hi Michelle

      As others have posted,  you should contact your MD so they are aware of side effect  and they will determine if you need to stop the med /  try something else

      I felt much worse on the MTX--pain much worse and in new joints---I read you could spread the # of pills on the day you take MTX over the course of the day but still only on the given day of the drug.  It helped a lot but I never got past 4 pills when I ran a temp 101.8/ chills and felt horrible.  So I am back on just  3 pills until I start Humira.  Scary to think about that drug and all the potential side effects but this awful disease requires powerful medication

       Hope they can find something that works for you.  Trial and error seems to be how it is treated as each of us reacts differently .     And yes, this is so difficult to cope with but hang in there.  They will find the right med for you in time.

  • michelle65680
    michelle65680

    Posted

    Thanks all for replies.. I did make it to work but ws sick too!! i still feel sick..i will report nose bleed to team as i was shocked..i do take folic acid evert day but mtx day but remember i only had 1st dose on saturday.... im hoping for a better day tomorrow.. i really like this site its really helping me....i feel like poo to be honest and im hiding it well....cant wait for my next app to see if score is down but also dreading taking my next dose of mtx...wish me luck! ..oh i did have a small meal tonite,,, but still that sick feeling.....when will it stop.....reminds me of when i gave up smoking with champix..i was soooo sick then! thanks again for response stars! 
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