Not a good day
Posted , 5 users are following.
hello, I have GCA/PMR since November 2012 and have been reasonably well ptrtty much after the first month on 60mg, and slowly reducing after blood tests (although I know they aren't terribly reliable). I ami presently down to 4 Pred a day which I have been doing on Eileen's slow reduction advice,, been on 4 for the past 5 weeks, and felt fine, walking, swimming, perhaps more wine than I have at home, (holiday) but not more than 1 or 2 glasses a
day. Perhaps the headaches could be sinus, also get like a neuralgia ache in jaw,
but I have had such a bad day today? I am on holiday, and perhaps being away, I may have panicked a bit, but not normally like that.
I woke with really bad headache which was sort of all over head and behind eyes, wobbly legs, tried to ride it out, went for walk, which was ok but once back headache, aches & pains mostly headache came back. Went to bed for the afternoon, slept on and off, legs like jelly when I got up, thought I would pass out if I stood up, really frightening.
drank a lot of water, feeling bit better, but never had a day like that before. Perhaps because away from home it's more worryuing. Question is Shall I up my pred?
1 like, 5 replies
tina-uk_cwall Jersey_Royal
Posted
The pain in your jaw, do you get that pain when eating or at rest?
You say your are on holiday, is this holiday in Europe or further afield I ask because if you are really worried could you get yourself along to hospital.
i'm so sorry that I'm rambling on but as a non GCA sufferer I simply don't know what to suggest. Hold on tight and wait for the more experienced members to advise you. I wish you all the best and hope this is not a flare after having done so well re reduction. Regards, christina
betty75074 Jersey_Royal
Posted
doreen25667 Jersey_Royal
Posted
I hope the rest of your holiday goes well. Try to relax --- easier said then done, I know!!!!
EileenH Jersey_Royal
Posted
As someone said - what are the temperatures? You've been drinking more alcohol than usual, I bet the food has more salt than usual - it could be just dehydration. Or food poisoning, or a bug, or all sorts of things. If you had had a day like this on holiday when you weren't on pred you wouldn't have panicked would you? Of if you had had a day like this at home?
Don't just knee-jerk increase pred - at 4mg you'd have to go a long way up to avoid a flare of GCA. If you still feel as poorly tomorrow consider asking a doctor if one is available but you cannot assume it is GCA just because you have a headache. Drink lots of water for a start and have a very early night and see how tomorrow is. The jaw pain in GCA is usually when chewing/talking a lot. It doesn't sound as if you've been eating!
Jersey_Royal
Posted
we are home in just over a week, so will keep off the wine, drink a lot more water, and relax down a bit, and see how it goes.
thankyou, will keep in touch.
Thankyou JR