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Just over 5 years ago, my left side of my face drooped and i was unable to speak, I went to my local A & E who thought that it may of been a stoke, I was kept on the stroke ward over night after having a CT scan...A stoke and TIA was ruled out.
I was able to get an appointment to see my GP within a couple of days as symptoms came back. He was going to send me to London to see a neurologist as they had a quicker seeing time, as he had no idea what was going on. But then decided against it and sent me to see my nearest one which took a while for the appointment to come through.
Over the following weeks my face and speech got worse. I went back to my local A&E and they took bloods and sent me for a MRI, but all came back normal and it was put down to Hemifacial spasms, and was told the i would have a EEG appointment come through and to see a neurologist who was based 30 miles away,
I thought great will get some answers (how wrong was i ) the neurologist got me to raise my arms and walk across the room and stuck a piece of cotton woll into my eye, then sent me on my way....
.I have been having these attacks now for 5 years and learnt to live with them, but last July i had 2 weeks worth and was kept in hospital over night, but sent home next day after being given intravenous diazepam. and got told i would see the neurologist again and have another EEG as there were sharps and spikes in my last one ( 3 1/2 years earlier)
I had my EEG this Feb and saw the neurologist this week, still no answers, now waiting for a nerve test to be done from head to toe.
and she wants to see me again in 3 months...and she is asing for the very first neurologist to see me.
3 weeks ago i collapsed and was taken to hospital with suspected stoke, as had left side weakness, could not get my words out, but again this was ruled out. since then i am unable to lift left leg high enough to go up stairs and i am also getting electric shock type feeling across left side of body and face.
any advice who be great
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