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Not Coping... SVT

Posted , 10 users are following.

gillian95988
gillian95988

Hi, I have started a few discussions here over the past week or so re my svt and missed beats, palpitations returning...

when diagnosed in October 2015 I struggled really badly with it - Sleepig almost upright on my sofa for 4 months with the fear that if I slept lying down in bed it would bring on another attack...

I also Never And Still Dont leave my house without my heart monitor "Just In Case"

This time around it's so much worse...

Is anyone else terrified by this!?

I consider myself a strong person and I have coped with A lot of things throughout my life - But this has just made me feel very broken.

   

0 likes, 32 replies

32 Replies

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  • lala23623
    lala23623 gillian95988

    Posted

    Hi Gillian,

    I totally understand your frustration I was the same way. I am out of town now and was so scared to leave because my anxiety is so bad and I'm always worried that I may have an attack while I am out somewhere. My suggestion to you would be to try anxiety meds. Anxiety is very common especially when you have SVT. It has really helped me out a lot. I would also consider having an ablation as an attempt to get rid of the SVT. I had one 3 years ago and it seemed to have worked until a couple of weeks ago when I had another episode but it didn't last long and my heart rate only got up to 140 versus 204 the first time. I'm not sure if it was SVT or anxiety though. They both seem to have pretty similar symptoms. So i would try to cure the SVT thriugh ablation and try getting on anxiety meds. Hope this helps.

    LaLa

    • gillian95988
      gillian95988 lala23623

      Posted

      Thanks lala23623,

      I am already on meds for anxiety, I daren't think what I would be like without them!

      My cardiologist doesn't seem to think an ablation it's that simple, but she is going to discuss with the team re an EP study to see if they can locate the exact area for ablation, but so many people seem to have had them!

      Well done you for going outwith your comfort zone... Hope all is going well for you 

  • sarah31791
    sarah31791 gillian95988

    Posted

    I have learned a lot from this discussion, and from the other discussions in this forum. I just had my first confirmed SVT, but after reading on this forum, I think I've had other, milder ones my whole adult life.

    I wonder - has anyone tried mediating as a way to approach this? I haven't had a big  meeting with my cardiologist yet, that's tomorrow. But in my very first meeting with him after my attack, he told me to meditate. I've been trying it, and it does make me feel calmer. Has anyone else tried that?

    • toffeecushion
      toffeecushion sarah31791

      Posted

      I would have thought it would depend on what is causing or affecting your SVT.  I don't believe mine is caused by stress so not sure it would help.  SVT does cause me stress and anxiety though so maybe worth a try.

    • gillian95988
      gillian95988 sarah31791

      Posted

      Hi Sarah, I do and try mindfulness and listen to relaxing music.

      But when it comes to an attack I just seem to freeze and feel totally consumed by it all... Horrible!

      Are you recently diagnosed? and do you know your triggers?

       

    • sarah31791
      sarah31791 gillian95988

      Posted

      Yes, I am recently diagnosed. I don't know my triggers. Just beginning on this journey. Thanks for sharing your story.

  • ann82027
    ann82027 gillian95988

    Posted

    I am going through hell at the moment with it, have experienced it for many years but after my attack that admitted me to hospital on feb 4th it has got worse, i was put on bisoprolol but i felt worse on that and decided to cut it in half and now i haven,t taken any for 2 days.  I met up with my daughter in town today, i was determined despite feeling tachy and hard heartbeats i would go, she said i looked so pale.    I sympathise with you Gillian, its like going through hell, i had a sleep this afternoon, felt a little better  but know its short lived and they will be back when i least expect them.  I,m waiting to see  heart specialist in  month. I also am an extremely strong person but this has affected my life over 40 years. I will be 70 in April and despite this i don,t look my age, never smoked, drunk lcohol, lived healthy apart from my love of cake which i controlled and never been overweight.
    • gillian95988
      gillian95988 ann82027

      Posted

      Aww ann,

      well done you for managing to go out. I am now avoiding going out and I have gone off work as well.

      I will be 50 in May and like you don't drink, I gave up smoking about 26 years ago and am not overweight...

      I haven't ever actually met anyone with this condition but going by the forums there's plenty of us about. 

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