Not diagnosed but feeling to ill to work, advice please, panicking
Posted , 5 users are following.
Hi folks,
I am 57 and have been aware of mouth problems for about a year, visited my doctor about it and I have been waiting for an appointment with a neurologist for over three months and my doctor thinks I have MS. I am now very quickly having more symptoms, muscle cramps, pain, fatigue, headache, a little bit nasal speech, problems with heat and cold and ballance and numbness are a few. To be honest just feeling rubbish. The worry is my husband has chronic pain issues and unable to work but is not receiving benefits because of it, he has never looked into it as he has been househusband looking after our youngest children. I have a couple of businesses, self employed and the only wage earner. We live in a rented house. Today I realise I am not fit for work at the moment, it exhausts me to much. How do I access any benefits we might be entitled to? We are panicking now and dont know how to move things forward.
0 likes, 10 replies
julia24924 helen87985
Posted
Hi Helen
Where do you live?
I am in a similar position as I am main breadwinner and we have kids and I don't know if I can sustain my symptoms. Try not to worry until you get a diagnosis.
J
helen87985 julia24924
Posted
julia24924 helen87985
Posted
Go to the citizens advise bureau . You will need a diagnosis before you claim any form of disability. Could you survive if you both had a disability allowance? Your health is your wealth! I wish you well, and you are not alone. Regards health care you need to be consistent in phoning them to make sure you are heard.
Good luck. J
helen87985 julia24924
Posted
Are you sure I need a diagnosis to get disability? That could well be over a year down the line, and what if it's not thought to be MS, that's crazy!! I have not even been given an appointment to see a neurologist and I am 4 months in but not well
julia24924 helen87985
Posted
Not completely sure you might get somewhere with a doctor's letter. Check this out with citizens advice.
J
FaithInHim helen87985
Posted
Hi Helen
Sounds like you need some professional advice. Not knowing where you live I can only suggest things that we
have available here in the USA. How long has your husband had chronic pain issues? Is he being seen by a
Doctor for this? Is he on pain management? He should have applied for disability when this first became an issue. You are the only wage earner. Do you have retirement savings? Life / Disability insurance??
Do you have Short Term or Long Term disability insurance? Many questions come to mind. You are still young
and you don't want to wipe out your life savings due to this medical issue you are having. Start with your Doctor and ask for a list of resources to help you determine what direction and steps you need to be taking now.
If you are in the USA, You can also check out your state's website, government agencies, health and financial
assistance. I wish you the Best Helen. Don't delay, start making a list, make phone calls, and get some clarity of what needs to be done. Take Care Keep in touch ~ Faith
fester helen87985
Posted
helen87985
Posted
Hi again and thanks for all your advice. Today had a positive visit to the citizens advice with a loverly lady and so I have phoned for my pip, my husband will do it tomorrow, he was just too stressed and exhausted today.
I don't want to go back into work, it's such a hard thing to accept as I am never usually I'll and quite proud of all the clients I have built up but my work is very physical. I just want to let myself accept I am ill and relax instead of ignoring how awful I have been feeling and soldering on. My symptoms seem to be progressing, within a week I have gone from the odd muscle spasm as I am falling asleep to about one every second, I can only compare it to a sensation of "popping candy" with cramps thrown in! Also today very nasal and stumbling over words through my sentences, not nice and a little embarrassing
Thanks again x
helen87985
Posted
So that's me waking up this morning hardy able to believe I phoned all my clients to tell them I can't work at the moment and to get cover to replace me, lying here in bed I feel ok and wonder if it's "gone away" but I start typing this message and my hand feels weak and I can remember waking a couple of times to find myself gasping for breath last night. I can also recall trying to cook last nights tea, hardly being able to open a tin and feeling like the knife I was using to chop the vegetables must be blunt... But it wasn't
julia24924 helen87985
Posted
You are unwell. You need to rest. Ask for support from whoever, people are glad to help. Try to occupy yourself with a film, book, journal. But this is your time to rest. Mind yourself, be gentle with you. This will pass and you will feel better but for now let go.
X J