Not diagnosed but feeling to ill to work, advice please, panicking

Posted , 5 users are following.

Hi folks,

I am 57 and have been aware of mouth problems for about a year, visited my doctor about it and I have been waiting for an appointment with a neurologist for over three months and my doctor thinks I have MS. I am now very quickly having more symptoms, muscle cramps, pain, fatigue, headache, a little bit  nasal speech, problems with heat and cold and ballance and numbness are a few. To be honest just feeling rubbish. The worry is my husband has chronic pain issues and unable to work but is not receiving benefits because of it, he has never looked into it as he has been househusband looking after our youngest children. I have a couple of businesses, self employed  and the only wage earner. We live in a rented house. Today I realise I am not fit for work at the moment, it exhausts me to much. How do I access  any benefits we might be entitled to? We are panicking now and dont know how to move things forward.

0 likes, 10 replies

10 Replies

  • Posted

    Hi Helen

    Where do you live?

    I am in a similar position as I am main breadwinner and we have kids and I don't know if I can sustain my symptoms. Try not to worry until you get a diagnosis.

    J

    • Posted

      Hi Helen

      Go to the citizens advise bureau . You will need a diagnosis before you claim any form of disability. Could you survive if you both had a disability allowance? Your health is your wealth! I wish you well, and you are not alone. Regards health care you need to be consistent in phoning them to make sure you are heard.

      Good luck. J

    • Posted

      Not completely sure you might get somewhere with a doctor's letter. Check this out with citizens advice.

      J

  • Posted

    Hi Helen

    Sounds like you need some professional advice.  Not knowing where you live I can only suggest things that we

    have available here in the USA.  How long has your husband had chronic pain issues?  Is he being seen by a

    Doctor for this? Is he on pain management?  He should have applied for disability when this first became an issue.  You are the only wage earner. Do you have retirement savings?  Life / Disability insurance?? 

    Do you have Short Term or Long Term disability insurance?  Many questions come to mind.  You are still young

    and you don't want to wipe out your life savings due to this medical issue you are having.  Start with your Doctor and ask for a list of resources to help you determine what direction and steps you need to be taking now.

    If you are in the USA, You can also check out your state's website, government agencies, health and financial

    assistance.  I wish you the Best Helen.  Don't delay, start making a list, make phone calls, and get some clarity of what needs to be done.  Take Care  Keep in touch  ~  Faith

     

  • Posted

    Hi Helen assuming you are in the UK contact your local welfare rights officer your husband probably qualify for pip maby you will as well anyway they will advise you and fill in any forms or you could visit citizens advice b euro they too will advise and do the form filling .
  • Posted

    Hi again and thanks for all your advice. Today had a positive visit to the citizens advice with a loverly lady and so I have phoned for my pip, my husband will do it tomorrow, he was just too stressed and exhausted today. 

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  • Posted

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    • Posted

      Dear Helen

      You are unwell. You need to rest. Ask for support from whoever, people are glad to help. Try to occupy yourself with a film, book, journal. But this is your time to rest. Mind yourself, be gentle with you. This will pass and you will feel better but for now let go.

      X J

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