Posted , 5 users are following.
Hello. Ive been a lurker on this site for the past few months in my quest to find answers to issues I've been dealing with since July of this year. I'm currently going through the medical system here in the US trying to find answers to what aisles me but have yet to find relief of my symptoms. Sorry for the lengthy post.
Male, late 40s, not overweight
It all began with a sudden change to bowel movements (loose stool, diarrhea) and onset of illness and general lack of energy. The only significant event around the time this started was a sports related back injury which I successfully treated with a few days worth of rest and NSAIDs.
Since that time, I've been dealing with the following list of symptoms -
Unintentional weight loss of 20lbs (I'm 72" and went from 204lbs to 182lbs)
Loose stool - yellowish brown (usually 1-2 BM/day, mornings mostly), sometimes float, mostly 'sticky' and dry
Daily nausea - usually worse in the mornings, then tends to subside in the evenings (my worst symptom right now)
Lack of appetite - I eat now mostly just to sustain/gain weight (fear of losing more wieght)
Right back pain, at base of rib cage (fullness/dull ache feeling in this general area)
Right shoulder pain (trapezius muscle inflammation)
Left upper quadrant pain - i can pinpoint a nerve/muscle just left of my sternum just below the last rib that's painful
Anxiety and depression
Just feel run-down
My brief medical history -
2011 - Gall bladder removed in 2011 (no stones but diseased; diagnosed via HIDA scan). Went through several months of hell leading up to a diagnosis. Even after the removal I experienced frequent diarrhea and was finally prescribed Cholestyramine which managed my symptoms. Right shoulder blade pain persisted but eventually went away.
Sept 2017 (when my symptoms started)
Blood work - all normal except ALT = 71 IU/L (9-44), Albumin = 4.8 g/dL (3.1-4.7)
Abdominal US - all normal, except mildly dilated bile duct 9mm (liver/pancreas partially obstructed due to bowl gas)
CT abdomen w/constrast - Liver enlarged, 20 centimeters craniocaudal, without evident cause. There are 2 too small to characterize low density lesions 1 each left and right hepatic lobes of doubtful significance. Everything else unremarkable.
Blood work - hepatic values all back to normal, tested for Hepatitis (neg) among other related things liver related (all neg)
Hydrogen breath test - abnormal (diagnosed with SIBO)
Colonoscopy/Endoscopy - normal
Fibroscan of liver - 5.6 kPa (normal)
Vit D = low (28 ng/mL) - prescribed Vit D supplements to take daily
Stool - pancreatic elastase (normal), fecal lactoferrin (normal)
MRI/MRCP w/wo contrast - waiting on results
My blood work appears to be relatively normal from what I can tell, and it appears Ive had a pretty extensive work up (lots of other blood tests I haven't listed above all came back negative).
Lately, I find myself going crazy. The nausea is completely ruining my life. I've become an emotional mess and its taken a toll on my family. It's hard to give them my all when I just dont feel well. I worry a lot about the big C since its been months of this going on with no clear end in site. Could a stone or sludge be stuck in my bile duct somewhere that would cause my pain/symptoms and the my liver to get inflamed? Could there be an issue with my pancreas? My hepatic and pancreatic enzymes are within normal ranges right now (although, my Albumin is always right on the edge of normal a 4.7g/dL, and my last lipase test came back slightly below normal at 19IU/L). Could all this be stemming from the SIBO I have? Back in Aug, I was put on 2wks of antibiotics for this (Flagyl & Keflex), which seemed to help a little, but I don't think cured me of it.
I'm not sure what I'm looking for really, maybe just to talk to some folks that may be going through some of the same things as me. I'm scared, I wont lie. This is the first time I'm posting anywhere about what I'm going through. Folks on here seem very sincere and supportive. While I don't wish what I'm going through on anyone, it does comfort me to know in some way that I'm not alone. Thanks for taking the time to read through this. God Bless.
0 likes, 12 replies