Not getting any better with increased dose of Levothyroxin
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I was diagnosed with an underactive thyroid in early March and put straight on to a dose of 100mcg of Levothyroxin. The blood tests also revealed that I was borderline anaemic.
Last week, at my latest review (based on blood tests and how I feel) the last bloods showed that the TSH score had come down from 7.41 to 1.3 and the doc told me that my target should be 0.2-0.3. He increased my Levothryoxin dose to 150 mcg. However my anaemia seems to have got worse and he is investigating that at the moment (stool sample). I have diverticulosis and seem to have been losing a lot of blood lately, hence this investigation.
The thing is I feel really lousy - the symptoms seems to have come back with a vengeance and I feel as if I am going backwards.
Is this normal and to be expected? Can anyone explain why it's happening? Have other people had problems with anaemia as well as the hypothroidism?
Thanks for reading.
mercurius
0 likes, 7 replies
Guest
Posted
If you have only been on Levo since March you won't be feeling better yet, it takes ages, several months ( or more ) usually.
It is common to have anaemia as well, if you have iron tabs don't take them at the same time as Levo.
You could be feeling worse as you aren't on the right dose yet, also any change in dose can make symptoms worse for a while. 100mcg was quite a high dose to start on, 25 or 50 is the usual starting point then increasing very slowly, usually about 6 weeks in between any changes.
Iv'e been hypo for many years but still have to cope with some of the symptoms. If you google other thyroid forum sites you will find out that it's not an easy thing to treat and many people never feel ' normal' again.
If your GP is wanting a TSH of below 1 that's good, many don't like going that low but to feel well that's were it should be.
I hope you get sorted soon, good luck.
:lol:
mercurius
Posted
Thanks for sharing your experience and advice.
It's so frustrating to feel like this all the time when you just want to get on and do things, especially now the summer is coming.
I've got an appointment with my doc next week to discuss the anaemia issue and I think he is thinking in terms of a course of iron and multivitamins. Also have an appointment on the same day with the dietician. I don't eat red meat (only chicken occassionally), mainly fish and veg so maybe I am not getting enough iron in my diet anyway.
Stay well.
mercurius
Guest
Posted
mercurius
Posted
Doctor is sending me for a gastroscopy tomorrow (yuk!) to find out whether there is any internal bleeding that could be causing this depletion in my stored iron.
I understand there is a link between hypothyroidism and ferritin levels, but have not seen any good articles on this.
Anyone got any links / articles / advice to share on this issue?
Thanks,
mercurius
Guest
Posted
I always take my levo first thing in the morning, preferably 1 hour before food and would take my iron later in the day.
Be patient, its hard, we all know how frustrating it can be, hopefully things will improve for you as it has for many others.
Take care.
Nikita
Posted
Guest
Posted
Not sure if links are allowed but if you google thyroid uk forum you will get loads of info about hypo and all things related to it.