Not giving up or in....

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Ok...I am new on computers so bear with me...lol. I have been diagnosed with this condition and have had it for nearly 3 years. The more they treat it the worse it gets. Yes I have tried every thing and I am down to making my own stuff now...So far It is off my face.   Now I am going to try to concentrate on  another spot...If it works I will tell you what I am using and how much to use. I have it from the top of my head to the bottom of my feet.  So far I am under a Specialist  care and even he can't believe how much I have. My family Doctor told me if they were to start an injection treatment that he thinks I need I would become toxic and more then likely die....So I went to work making my own cure.....It is effecting my mind and my life.So far my face has cleared up and I only have one tiny spot above my upper lip and a small spider vein that burst because of this or the treatment. I have just been put on an antibiotic and another cream. I am not using it on my face though .I will continue to use my own. ...I feel like a human ant hill....God Bless you all....As Always I forget my nickname already...lololol...I hope it comes up automatically ...lol..giggle.

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  • Posted

    I went off using the chinese herbs because it was getting worse everytime I went off them. Now I am not taking anything and I am getting lots of rest, no cafienne, no wheat , and they are all going away. They were on my arms all the way down to my fingers, knuckles, back of neck, forehead and shoulders, behind my ears, and upper back. All gone except for a little on my forearm. I feel much better. Being in a lower stress situation. Also the doctors do not know what to do to treat this and so they try these expencive cortizone creams and stuff and some of them are very dangerous and can kill you if you take for too long and too much. I would stay away from all of that stuff, it does not help in the least. Gave up on that.
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    • Posted

      If you don't use the creams as directed, they can cause thinning of the skin. They will not kill you. They have worked great for me. My angry red spots have faded considerably.
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  • Posted

    I have had it for over 12 years and nothing that a doctor has given to use topically have ever helped. The injections I had actually made it worse. It is not a disease that a dermatologist can help with. It is an auto immune disease that has to be dealt with internally. I also find that stress makes it much worse and my spots get more angry and irritated when I am  really stressed.

    holly88724,I also tested sensitive to wheat and I have cut it out. I am seeing some results from  removing that and the other foods that I tested allergic to. 

    I am reading a book by Susan Blum called The Immune System Recovery Plan, it's all about dealing with autoimmune diseases. I have found it to be so imformative.

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  • Posted

    Hi Mary, Plaquenil has worked for me and with your outbreak sounding much worse you might want to try it.

    Julie : )

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