Not ibs as diagnosed by go!!!

Posted , 6 users are following.

A few weeks ago I did a post about my doc diagnosing me with ibs even though I had blood in my stools, forward 4 weeks and I'm finally a stone's throw away from a diagnosis and it is definitely not ibs!!! I had a colonoscopy yesterday which found I had angiodysplasia which had been picked up on my last scope 3 years ago, but this time they also picked up sigmoid colitis, to say I am relieved is an understatement

I finally know it's not all in my head and I do have a genuine condition. I had about 8 biopsies taken and have to wait for a confirmed diagnosis from the consultant but I'm almost there and can now start looking at diet, medication etc!!! Sorry just needed to share as I'm just relived I have answers.

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    Hi Sparkler. that's great news. Anyon who is suffering with chronic bowel symptoms will understand why I say that is great new(as opposed to bad news) being diagnosed with a chronic condition!! - its because you can now get accurately treated & hopefully get your symptoms under control soon!!!!! what is angiodysplasia btw sparkler? I've not heard of that - how does it "look" on colonoscopy? I have ibs-d, bile acid malabsorption, fructose malabsorption, & colitis, & am due to have some proper small bowel investigation at last, as all the above conditions are clinically under control, but I am again having all the symptoms minus the bleeding of a colitis flare. It took a stern letter from me to my consultant following my recent "within normal limits" colonoscopy to get him to follow up rather than "catch up" with me at my next appt!!! I have been off work since mid may & can't just sit back & suffer watching my job become all the more jeopardised. Just because my colonoscopy was ok, doesn't mean I am instantly better!!! I had to put many facts in front of him in my letter to try & flick a lightbulb on with him; a couple of days later he rung me & without any resistance agreed to retest me for coeliac disease(was tested nov 2012-negative) & do a small bowel contrast mri before likely going on to do a camera capsule pill endoscopy of small bowel. both of these i requested as my recent stool calprotectin test was raised at 280, but my colonoscopy normal, & both coeliac & crohns can cause positive calprotectin test. I would recommend to you (its helped me) a low residue diet - everything white - rice,pasta, bread, no fibre, cereals, seeds ,grains. all veg cooked & skin removed, fruit with no pips,seeds, skins. I can't actually eat fruit because of my fructose malabsorption, & hardly any veg as it comes out looking like it went in most veg. I make up for this inadequacy with a 500mg ester c vit c capusle nightly (ester c is a non acidic form of vit c more easily tolerated/absorbed by people with bowel conditions). I am soooooooo pleased for you, now you can concentrate on getting well & getting your life back hun. please keep us posted on here of your progress with meds, wellness, diet etc, & feel free to ask any questions or advice. xxx

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