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Not long diagnosed with LS Advice on triggers

Posted , 12 users are following.

janemary22
janemary22

Hi guys just wondering if anyone can identify possible triggers ... I am struggling with being very uncomfortable down under .. Would anyone had intolerance test done? I am thinking of asking dermatologist about this Thanks

0 likes, 12 replies

12 Replies

  • Tweetmepete
    Tweetmepete janemary22

    Posted

    When I look back at all my outbreaks Jane, I am nearly positive it's stress. Don't think it was food or anything else. Stress is such a new phenomenon to people in the last few decades that very little is know what's doing inside us.

  • jessik
    jessik janemary22

    Posted

    Never had a tolerance test done, but I have noticed that atleast with me food doesn't really trigger it but stress definetly plays a role on my flare ups. I have noticed that if I'm starting to get uncomfortable I start using my clob a little more often and I get myself some cranberry juice. It seems to help.

  • jane08222
    jane08222 janemary22

    Posted

    Yes, get tested....usually a biopsy..once you know for sure..be aware.....there are triggers, lots are common to us all....then each individual has their own sensitivities.....stress and physical activity for sure affect all of us, then every one has there own triggers.....I have really sensitive skin, plus Lymes and celiac disease (gluten intolerance)...the steroid cream needs to be massaged into the skin....I soak in warm water to facilate the effect of the steroid....most initially think the skin is thinning....actually it is thickening! In order for the steroid to help the skin it needs to be massaged in for about 90 seconds. Moisturizers to use between Clobetisol steroid treatments vary.....I use Organic Coconut oil, and EmaidMax ......controlling flair ups is necessary to our overall well being!
    • gnome27
      gnome27 jane08222

      Posted

      Doh! I was diagnosed with it yesterday. Fairly gutted to say the least. Im lucky in that i dont often get stressed but i work out all the time. I'm a personal trainer. ??

      I am pretty scared by all this i must admit.

    • dani8979
      dani8979 gnome27

      Posted

      Make sure you apply steroid cream twice a day and plenty of barrier cream or ointment, otherwise you will be in a lot of pain and discomfort. It is the rubbing of the skin against skin which creates friction....stay moisturized at all times in the genital area. Rinse with bicarbonate of soda mixed into water after every visit to the loo...to avoid tears, cuts, irritation to the skin and also rinse the pee which hurts the diseased skin.

      Come to terms with the illness because it can not be cured for good and you need to learn to live with it, treat it. Stress and refined sugar are major triggers for LS and any other autoimmune disease. Cut the sugar out of your diet, manage stress levels....meditate, do some yoga, anything that calms you down. Wheat is also a big player in LS....glutten free diet.

      Stressing about it will not help you at all...keep calm, take notes on all the advice you find in these forums and try them out until you find one that suits you and makes you better, heals you.

      Working out all the time...you need to keep in mind friction. LS can put you through a great deal of pain, burning....so ease your working out routine when you are in pain or feel is coming.

    • Guppy007
      Guppy007 gnome27

      Posted

      Switch from tight pants to comfy yoga pants and that should help.
    • jane08222
      jane08222 gnome27

      Posted

      you WILL BE OKAY! In time you can figure out what works best for you....think positive....the most common treatment....clobetisol 2xs daily (rub in for 90 seconds! morning and nightv)....and rinsing the area after urination with water and baking soda (I use a squeeze bottle! ) the lubricate with coconut oil, or emuaid!
  • christine97462
    christine97462 janemary22

    Posted

    Although this is my first flare-up, I have had another autoimmune disease, and can say that stress is a significant factor.  I am currently under extreme stress levels, and am not surprised that I was diagnosed with a new autoimmune disease.  I have been using the steroid ointment and a balm that I made for myself with organic ingredients, and am feeling much better; it's been about 10 days.

  • seginns
    seginns janemary22

    Posted

    Sugar definitely sets mine off. I ate a fruit bar with 16g sugar yesterday and by evening I was feeling that irritating tingling. I’ve also discovered that using a mirror while I put on my steroid ointment helps me not miss spots. That alone improved things greatly. 
  • dani8979
    dani8979 janemary22

    Posted

    Stress is a major trigger in all autoimmune diseases....LS is an autoimmune skin disease. Learn to relax, do some yoga, meditate....You are wasting your time thinking about intolerance testing, LS makes you uncomfortable. Refined sugar is also a major trigger....cut it out of your diet.

    Learn to treat yourself, talk to your doctor and find the right creams and ointments for you, keep the area moist at all times. Use the steroid cream and a barrier cream or oil.

  • Guppy007
    Guppy007 janemary22

    Posted

    I would say diet is a definite trigger (Sugar) (Gluten) (Dairy) followed by stress. 

    I agree that having intolerance tests wont do anything apart from cost money.  

  • dani8979
    dani8979 janemary22

    Posted

    My LS came along with diabetes and I also have hypothyroidism...three autoimmune diseases. Diet is crucial...I am sugar free, glutten free, dairy free, I follow Paleo diet, no processed food and try to eat as organic as I can.
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