Not much help or support for Diverticular Disease

Posted , 17 users are following.

I was diagnosed with Diverticular Disease in Dec 2013 after 4 days in hospital and the Drs having no clue what was wrong. After having a CT scan they found the problem. I was 30yrs old and if Im honest I was shocked. I felt this was an 'elderly' thing. 

Since my diagnosis I have had 4 bouts of diverticulitis that I have dealt with myself. I take paracetamol and go on a liquid only diet for 4 days and until the symptoms go away. I had a sigmoid colonoscopy in April to see how much of my colon has these diverticula and the Dr said it was of medium severity at this point. 

The only way I can describe the pain of a flare up is like having contractions, Ive had 3 children and would take childbirth over this any day. 

The point Im trying to make is that I have found there is little or no support for people with this digestive disease. I read conflicting reports on what I should be eating to help live with this and its starting to take over my life. I run a business and have 3 children so I need to be able to manage this.

Natalie x

2 likes, 18 replies

18 Replies

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  • Posted

    hello Natalie. Hope you have not had any more attacks lately.  Ive just come out of hospital with no further help at all. I agree with all your comments!!!!!

    Have you found a diet sheet that can help us? What do you find helps?

    Best wishes to you. Vera.

  • Posted

    I agree ,my doctor has no time to give me anymore , he says I should stop visiting doctors. Where do you go from there when you are spoken to in this way. I made no reply to him I was dumbfounded by his remark. 
  • Posted

    Hi there. I've had surgery and had a piece of my colon removed. You need to ensure you get enough fibre daily. Min 25g. You also need to have a min 2lts of water p/day.

    0828467792 if you would like to chat further.

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