not much pain but always tired.
Posted , 6 users are following.
hi, have been on lodotra for about 4 months now and think I have had pmg for at least 2 years before being diagnosed, most of pain has gone but still feel tired most of time, would be happy to stay in bed but obviously dont, is this normal? started on 15mg now down to 9 mg, has made me gain a lot of weight but has done nothing to make me hungry, find this very hard as my appetite has been poor for the last 2 years does anyone else feel like this?
1 like, 12 replies
tina-uk_cwall vanessa66630
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constance.de vanessa66630
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I have had PMR for 3 1/2 years, have always been in pain and am always tired. Doctor does accept I'm atypical. I am sure you will be able to cope soon. The experts will advise.
EileenH vanessa66630
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The fatigue is something you have to learn to manage, the pred manages the pain and stiffness. Rest and pacing yourself is the way to manage the fatigue. You have to be careful not to overdo things when you do feel well enough to do them and for some people an afternoon nap actually gives them far more useful time in the day when they feel less exhausted. Getting out into the fresh air also seems to help many , even if they don't do much, a half hour stroll can make a lot of difference.
Have you had your vit D level checked? If that is low it can leave you feeling very tired and that is common in all autoimmune disorders.
Can't really help over the weight gain - I've steadily LOST weight since starting Lodotra as I think I have told you, though I eat next to no carbs which does make a big difference. Maybe you need to overhaul what you DO eat. Fluid retention is also associated with pred and eating carbs.
charlie44644 vanessa66630
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Charlie 44644
EileenH charlie44644
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I take extra vit D during the winter - the 800 IU may be more than the RDA but the UK is a long way north so you aren't getting the bulk via skin production except when you are in the sun at midday without sunscreen between May and September. Even here in Italy about 80% of the local population is thought to be deficient!
charlie44644 EileenH
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EileenH charlie44644
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charlie44644 EileenH
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Thanks for the info.
Charlie 44644
EileenH charlie44644
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Yes, you are also right about how much sun you need, really not a lot but you need an area similar in size to arms, shoulders and face exposed to the sun without anything in the way! And that includes sunscreen - even Factor 8 reduces the amount of vit D made by over 90%. Then, at 70 your skin makes barely a quarter as much vit D as at age 20, plus you tend to wear more clothes than 20 year olds!
teenyjeeny vanessa66630
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teenyjeeny vanessa66630
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EileenH teenyjeeny
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