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  3. Polymyalgia Rheumatica and GCA

Not PMR

Posted , 6 users are following.

Snaggler
Snaggler

I seen my oncologist today and she got a letter from my rhuemotologist saying that what I have is not PMR as the symptoms and tests results were not typical. When he wrote her it was before he got the x-rays and the bone scan test results back. The bone scan shows arthritis in the wrists and ankles as well as the sternum. I have no idea what the x-rays show. I have Tietze syndrome which means I could have a variety of different types of arthritis. The prednisone has caused all the problems with the CLL/SLL and I need to get off of it ASAP. So it is 1/2 pill a week withdrawel from this point on. I am hoping my arthritis specialist has an answer for me on the 27th of this month so I know what it is. I swear I am in so much pain still and if it were PMR, I should not be. So the GP jumped the gun and stuck me on this horrible drug which has in turn caused numerous other problems. I pretty much have every single side effect it gives. Anyway that is where I stand at this point. Once I find out what kind of arthritis this is I am going to post to that one. I have to go in for blood sugar testing tomorrow as the oncologist suspects I have diabetes from the prednisone. What I still am not understanding is why in the first month of taking prednisone I had most of the pain gone but then it all started to creep back during the second month. I've been on the drug for a bit over three months now and it progressively is getting worse in the pain department. My ribs are killing me. Thank you all for your support through this.

1 like, 16 replies

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  • carolk
    carolk

    Posted

    hi good luck for monday ,iknow its frustrating wanting your gp to disclose info if he has any but its the way its done that each consultant tells you what he has been found in their field of expertise .i hope it all becomes clearer on monday .i have only personal knowledge of pmr mainly gathered from this site and one year is the drs dream its not like that in real life ,i have had it one year and cant say i am any further forward sorry but the sad fact is it does not follow what the books say !!!!!! once again good luck for monday take a list of points you want clarified and dont come out till they are ticked off !!!!! carolk
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