Not PMR but Fibromyalgia
Posted , 15 users are following.
My doctor decided to change my illness to Fibromyalgia. He thinks I did not respond to prednisone as he expected and suggested I use Tramadol for pain. Tramadol works very well for me, but I'm afraid to get addicted to it, I use it only sometimes or when I need to have more energy for some task or trips. I still think I have PMR, I have all symptoms you describe on this board, my pains are similar to yours, but my blood work is normal now. I could not tolerate prednisone when I was just diagnosed with PMR almost 2 years ago and I started taking Zyflamend™ Whole Body by New Chapter (it's based on Turmeric and other antiflammatory herbs). I think it help somewhat me with pain and inflammation. My question to you on this board if you were suggested by your doctor to take Tramadol for PMR and if did taken have you had any improvement by taking Tramadol.
0 likes, 19 replies
tpeter60 nellie14381
Posted
I would much prefer it to Prednisone for my PMR if my doc would do the same .
Guest nellie14381
Posted
i also have been told that the component has been adjusted and is not as addictive as prior. That from a druggo I know.
i know how much better I got from taking Tramadol off my listing and have over the last 2 years, been dropping and changing all my medications, for the better....😇. I am not an addictive nature though and extremely strong minded, so just do what you feel comfortable with. Good luck.x👏.
Elijo nellie14381
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Buffy61 Elijo
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Elijo Buffy61
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mphooey nellie14381
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I took Zyflamend and it did nothing. Glad it worked for tou.
erika59785 mphooey
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iellen32 nellie14381
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My health issue is all about vision though what is quite scary to say the least.
i am sorry for all who suffer pain- discomfort and the limitations it brings!
Hope an unexpected good solution may come to you, Nellie, and to all with the same symptom.
Everything is possible.
IssyR iellen32
Posted
Can i ask you, what actually happened to your vision? how did you know you had a problem? Did it come on quickly? Did you have the jaw pain that's described?
I have a headache have had it for over a month some days sorer than others (the doctor doesn't even acknowledge i've told him) my eyes are awful but i broke the glasses i had prescribed this time last year a few months ago and have been wearing the ones from before that...i don't know if it's just because it's the old glasses i have the headache and vision problems as i have no pain in the jaw...do you think an optician would be able to tell?...that's a lot of questions lol xxxxx
iellen32 IssyR
Posted
Oh, Issy, sorry, sorry!
It took me one month to be diagnosed because my internist did not go ahead with more tests when I was complaining of flu like symptoms, pain on my joints, night sweats, loss of 12 pounds! He said a just had a throat inflammation and later on prescribed Bactrim!
obe month later I had a symptom of a kind a strange feeling in between the cheek and the eye. It was Sunday, I went to the ER of our local hospital and within 3 hours doing after all tests I was given Pred 60 mg I it to know I had GCA and I was referred to a surgeon (biopsy) and to a rheumy.
It was Jan. 2013. I had some flare ups because dictirs like to taper too fast the steroid and our body does not accept those jumps
yes, I had jaw pain when chewing ( both sides), no other pains, neither in scalp, neither shoulders, or headaches. I still drive without using my glasses for distance and the lens strength of my reading glasses are the same since
one year and 1/2 ago.
I went to see my ophthalmologist after being diagnosed, for a complete examination ( which was sent to the rheumy ant to my new internistand go to see him every one year. However in between those consultations now and then I see an optometrist to be sure I am ok.
I am careful with this precious thing - VISION.
iellen32
Posted
I started my treatment on a strict diet of salt and sugar and avoiding all glycemic carbs, etc, etc. I keep this diet just going out of it now and then.
I would go to see an optometrist or eye doctor if I was you.
It looks like your eyes are showing you it' s time to go as soon as you can.
Issy, dear, please let's keep in touch! For such a long time I 've been waiting for the chance to talk specifically on GCA and most part of patients here have PMR.
What kind of diet do you follow?
Did you gain too much weight? How much of Pred are you in now?
i am taking 1Omg because those flare ups.
well, Issy,
no, it was not a lit if questions.
I must apologyse for my delay on replying to you and also for sending my answer in two Replies!
Regarding the Pred how much are you taking now? How the tapering is been done so far?
When our vision goes bad, we better check with the doctor about the amount of the Pred, or we need to see the eye doctor / optometrist.
iellen32
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As far as I see you are the only one diagnosed of GCA - most part of patients here have PMR.
Hoping we will contact again, I leave you now, wishing you the best in this New Year, exactly all I wish to myself.
Stay well.
Take care.
IssyR iellen32
Posted
I haven't been diagnosed with GCA, that's why i was asking all the questions. I'm afraid i haven't been healthy eating for a long time...i had an awful lot happen in the last year, with illness and my mum died and i'd completely given up on trying to look after myself i know that's a terrible thing to admit...i'm hoping to get back on the straight and narrow sooner rather than later...i apologise for talking double dutch and causing you to think i'd been diagnosed with GCA...i always enjoy your posts they're always really positive and supportive...thanks for answering all my questions..i think i'll try to get an appt with doc after work...anyway will go for now starting work in 6hrs...!!
Where are you from Iellen? your english is very good but i feel that you are more exotic lol xxx
ptolemy nellie14381
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gillian_25383 nellie14381
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