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So, I'm 36 and 3 years ago I had mierna inserted. I was bad and didn't go back to doctor for 3 years. I have not had a period for at least two years. When I went to get my annual exam. Doctor took one look at me and asked if I had any trauma, pain or icing. Which I do not feel like I have had any real symptoms but my labia is fused. Seriously, what hell? I just don't get it. It's there any way to get in fused? She gave me estrogen cream but I really do not see where that is going to help. Doctor had me look and you cannot even tell they were ever there. How could I be so clueless and not notice? However, I do feel like I have had subtle symptoms looking back. Ugh, anyway I am frustrated and scared. I feel like it has to be the IUD. Anyone else think th at is the cause?
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If it is of any consolation...
Fusing is typical for LS. No one knows why LS does what it does. Some doctors think it could be a low estrogen. That's probably why you were given estrogen.
I know the way it looks. My bottom part looked just like it. Only a small pin hole left to pass urine in the end. However, there is a way back to 'the original' state of being.
It took me a good year to re-verse back to a fairly normal looking vulva area. After a dilation procedure was done (absolutely necessary in my case to be able to pass urine) ( At that time the specialist could already see that vagina and urethra were unharmed.) I started rinsing with baking soda water (three pinches in a small 250 ml spray bottle) after every bathroom visit because I was afraid of infection. Debbed all dry and covered with coconut oil. Coconut oil has more than one quality, but at the time I thought it would help to moisterize the area. Gradually the fusing 'melted' away.
At the same time I had to keep dilating to keep the small part open. Which gradually widened with gentle care.
Meanwhile I kept using the estrogen cream, avoided sugar and alcohol, and stress. (the three biggest triggers for LS) Then I started to do a mainly alkaline diet all together; No gluten, no dairy. It somehow showed that LS doesn't seem to like an alkaline environment.
Added Omega 3 as supplement, and extra Vit. C (1000mg per day)
There is much more info on this site. Not all people take the same approach, we're not all reacting in the same way either, it seems. I encourage you to look through the older discussions as well.
Any questions - just ask. It is certainly no small thing to discover what has happened down below.
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