not sure but maybe LS? I'm new.

Posted , 6 users are following.

So, I'm 36 and 3 years ago I had mierna inserted. I was bad and didn't go back to doctor for 3 years. I have not had a period for at least two years. When I went to get my annual exam. Doctor took one look at me and asked if I had any trauma, pain or icing. Which I do not feel like I have had any real symptoms but my labia is fused. Seriously, what hell? I just don't get it. It's there any way to get in fused? She gave me estrogen cream but I really do not see where that is going to help. Doctor had me look and you cannot even tell they were ever there. How could I be so clueless and not notice? However, I do feel like I have had subtle symptoms looking back. Ugh, anyway I am frustrated and scared. I feel like it has to be the IUD. Anyone else think th at is the cause?

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  • Posted

    I had the mirena, but I only tolerated it for a year. Instead of decreased periods mine increased, every three weeks for a week long and super heavy. I got the mirena out and a month later had a tubal ligation. A month after that I developed LS.
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  • Posted

    Did the doctor give an explanation as to why your periods didn't happen for two years?  

    If it is of any consolation...

    Fusing is typical for LS.  No one knows why LS does what it does.  Some doctors think it could be a low estrogen.  That's probably why you were given estrogen.  

    I know the way it looks.  My bottom part looked just like it.  Only a small pin hole left to pass urine in the end.  However, there is a way back to 'the original' state of being.  

    It took me a good year to re-verse back to a fairly normal looking vulva area.  After a dilation procedure was done (absolutely necessary in my case to be able to pass urine) ( At that time the specialist could already see that vagina and urethra were unharmed.)  I started rinsing with baking soda water (three pinches in a small 250 ml spray bottle) after every bathroom visit because I was afraid of infection.  Debbed all dry and covered with coconut oil.  Coconut oil has more than one quality, but at the time I thought it would help to moisterize the area.  Gradually the fusing 'melted' away.  

    At the same time I had to keep dilating to keep the small part open.  Which gradually widened with gentle care. 

    Meanwhile I kept using the estrogen cream, avoided sugar and alcohol, and stress. (the three biggest triggers for LS)  Then I started to do a mainly alkaline diet all together;  No gluten, no dairy.  It somehow showed that LS doesn't seem to like an alkaline environment.  

    Added Omega 3 as supplement, and extra Vit. C (1000mg per day)

    There is much more info on this site.  Not all people take the same approach,  we're not all reacting in the same way either, it seems.   I encourage you to look through the older discussions as well.    

    Any questions - just ask.  It is certainly no small thing to discover what has happened down below.   

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  • Posted

    Hi annaldn, firstly just let me say that I understand how shocked and upset you must be feeling.   Many of us on this site have been through much the same, and its a pretty shocking experience looking at your vagina one day and  realizing a good part of it has disappeared!!   Having said that it could be worst! really!! some woman (like Hanny) have had to have operations etc, and so at this stage I would urge you to become really well informed on this condition, by reading as much as you can and implementing the ideas suggested by others...My doc diagnosed LS in Feb of last year, she was incredibly blasé about the whole thing, so much so in fact that I felt I had something similar to thrush, and because of her laid back approach I applied the cream given to me, shoved it in a drawer and forgot about it until one morning when I looked at myself with a hand mirror and realized there was something very very wrong Sigh! since that day I have been very careful and no more fusing has occurred. 
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  • Posted

    Interestingly I had the mire a coil inserted at a greatly reduced dose of HRT.... Within months no periods, and LS diagnosed! 
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    • Posted

      There it is again - LS and a connection with hormonal 'manipulation'?  There is a research team that tries to understand the long lasting affects of birthcontrol in conjunction with LS.  What are your thoughts Sue?


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