Not sure if it's Chronic Fatigue Syndrome, Fibromyalgia or Polymyalgia Rheumatica?
Posted , 13 users are following.
Hello everyone! I am really hoping someone kind out there could shead some light or even comfort me a bit here. I am feeling a bit desperate now...
The story so far,and I'll try to keep it as short as poss:
I had a period of great stress in April, following a move into a new flat. within days my hands and ankles started to hurt to the point that I couldn't walk to the bathroom in the morning and hands felt like they'd been clenched all night (and still do). I had some severe cold sweats where my clothes would be soaked in minutes, severe sore throat and a thirst like i have never experienced in my life (I'm a 36 year old female from kent) and severe tiredness. I quit drinking alcohol and smoking and over about 2,5 months of rest the symptoms almost went away apart from the stiff hands and occasional fatigue and a shakey feeling where i need to lay down.
Now 2 weeks ago a sore throat started after another period of stress and some alcohol and cigarettes (two nights out), the sore hands are worsening, my sore ankes are back, i have a severly sore throat with white spots on the back of my throat, severe fatigue and some thirst and itchyness around my eyes, but not as bad as before.
My bloods have been taken over and over and I have had a CT scan and ultrasounds of my liver, pancreas, womb. It came back that I have some low level of inflamation in my bloods, elevated liver enzymes, high cholestrol and a small amount of fat on my liver and kidney stones.
I am a healthy weight, eat a very healthy diet and exercise moderately. I get sun and also take a vit d supplement along with folic acid (as i am trying to get pregnant for the first time), milk thistle, borage oil and a probiotic daily. I had glandular fever as a teenager, very badly and I also have a family history of auto-immune problems. Mum has mialitis of the spine, auntie (mums sister) fybromyalgia and nan has sjogrens syndrome and both nans have arthritis.
If anyone can relate, shed some light or advise, I would be incredibly grateful. It's seriously getting me down.
3 likes, 65 replies
Anhaga anna41347
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anna41347 Anhaga
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anna41347 lodgerUK_NE
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ptolemy anna41347
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anna41347 ptolemy
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ptolemy anna41347
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constance.de anna41347
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Hope you sort your problem out very soon. There might even be an ME forum on this site you could try.
tony92243 anna41347
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constance.de tony92243
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anna41347 tony92243
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tony92243 constance.de
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EileenH tony92243
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The main disadvantage of starting at such a high dose is that other things will respond to high doses - only PMR responds so dramatically to the moderate doses.
But now you are pretty much pain-free you can concentrate on reducing fairly fast before your body gets used to the high dose. There is actually no reason why you shouldn't drop straight away to 20mg after just a few days. 40mg is generally used in GCA but if there are no symptoms to suggest that you don't need that much.
tony92243 EileenH
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EileenH tony92243
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pauline36422 anna41347
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ideas when i dont know anything positive. only starts worry so good luck
and hope you get sorted
anna41347 pauline36422
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