1. Community
  2. Women's health
  3. Endometriosis

Not sure if it's Endometriosis or not...

Posted , 2 users are following.

tammy271093
tammy271093

Hi!

I have recently been in talks with my doctor after I'd had enough of the pain I was going through and told myself to go and get it sorted once and for all. I started my periods when I was 14. I have never had heavy bleeding but I have always had extreme pain right in my lower abdomen, intense lower back and leg ache to the point where I struggle to walk and feel like my hips are being squeezed together. I have always suffered from constipation my whole life but when I am meant to be on my period, it loosens everything instead! Bloating and tummy soreness has gotten worse over the years but I had always put it down to IBS. As I've gotten older I get bad nausea with it and can get into states in the middle of the night where it'll come on and I have to rush to the bathroom to throw up. Normally with the pain combined I nearly pass out on the floor and I have to have somebody with me to make sure painkillers and a hot water bottle is close by to help me. Over the years I've constantly placed myself on contraception so that I don't have to deal with all the pain and sickness that comes with my period. The coil caused me to have a haemorraghed cyst in my left ovary so I had that taken out, the implant made me still have my intense pain but with absolutely no bleeding and the injection was perfect for me. However I am only allowed to be on the injection for so long before I have to have a break therefore I had the implant inserted once again into my arm last June and have suffered during ovulation ever since. I have no choice but to take cocodamol which makes me incredibly drowsy and have hot water bottles stuck to me. Some days I can't get out of bed. The doctor explained to me that some forms of Endometriosis only occur when you ovulate which is why I have now been referred to have an ultra sound scan and an appointment with a gynaecologist to get to the root of it all. It really affects my life when it comes on. I can deal with normal stomach pain but with all the other symptoms that come with it, it's a living nightmare. Any advice???

0 likes, 3 replies

3 Replies

  • aitarg35939
    aitarg35939 tammy271093

    Posted

    Hi Tammy:

    I'm so sorry for what you're going thru. Believe it or not, there are at least a few women who have no pain with endo (1was on here sometime in the last year), so that you might only have pain when you ovulate does not surprise me. A lot of your pain sounds pretty classic, tho of course I am not any member of the medical profession.

    The IBS might be just that or it might be endo, or some of both. As my endo progressed I sometomes had long bouts of intractable diarrhea, interspersed w/constipation. IBS was a new diagnosis then and just as trendy as it is today, and docs just love that diagnosis. Time & tests will tell.

    Speaking of tests: if the ones you are doing come back "no endo," you still won't know definitively until you have a laparoscopy.

    I hope that they find something eminently treatable.

    • tammy271093
      tammy271093 aitarg35939

      Posted

      Hello aitarg35939,

      Thank you for your reply - it has been helpful. I guess I shall have to wait until I have the laparoscopy, I am sure they will want to do the procedure smile

      Thank you anyway,

      Tammy. 

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.