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Not taking medicines

Posted , 5 users are following.

kristanty
kristanty

Hi, i'm Kris. I'm 23 years old. It's been almost 2 weeks i don't consume my medicines. And you know what, i feel nothing. I mean, i'm fine during this 2 weeks. Doctor told me to not go under a sunlight, UV is not good for me. But in this 2 weeks i exposured to sunlight a lot, and i'm okay. Does it mean i already cured from Lupus? Will simething bad happen if i don't take my medication? Actually, i fell depresed, brokenhearted, and lonely. It's like no one love me anymore, even my family. I fell sad whole day. I'm ignored, i don't know. No one understand me but i can't force them to understand me tho.

btw, sorry for my bad english. I hope you guys can get what the point is. smile

3 likes, 11 replies

11 Replies

  • Florabunda
    Florabunda kristanty

    Posted

    HI Kristanty.

    Lupus is an 'up and down' disease. Things in your life - getting a cold, stress, not sleeping can 'switch on' a bad episode or 'flare'. So lupus medicines help 'smooth out' the ups and downs - so they work best when you take them all the time.

    You sound stressed or depressed. Lupus can make you feel like this. Learn as much as you can about your illness on the internet - and talk to someone about how you feel.

    What is your first/2nd language?

     

    • kristanty
      kristanty Florabunda

      Posted

      Hi Florabunda

      Thanks for your advice. Yes, i still learn about Lupus.

      I live with 'normal' people everyday every hour every time. I dont have any Lupus friend in my real life. Maybe that makes me depressed and lonely and like no one else care. Poor me :D

      My 1st language is Bahasa anw smile

  • marion64534
    marion64534 kristanty

    Posted

    Iv stopped taking one of my melds and do feel better, I now only take azathioprine,100 mls aday,although I feel fine I wouldn't stop these as you need to keep your amune system lower than normal to stop it going into overdrive, do you have regular blood tests? As this will indicate a problem that you may be unaware of.
    • kristanty
      kristanty marion64534

      Posted

      Hi Marion

      I begin taking my medicines again. Did u ever take medrol before? Now i take medrol and azathioprine only.

      But sometimes i have headache. My doctor told me to take sibelium if i get headache. But sibelium seems doesnt work to me. It only make me yawning and sleeping all day after i eat it.

      It's been long time, a year maybe, i dont check my blood test. It's expensive. Hehehe..

  • marion64534
    marion64534 kristanty

    Posted

    We are lucky our blood test is free,or I wouldn't be able to afford it, I have mine done some times weekly,as white blood count gets low, answer to ur question no I haven't been on Medrol, not heard of that one, I haven't told the. Doctor iv stopped hydroxachloraquine, I just got it into my head to stop it, as I'd read about mixing the two together, some would say I'm silly but I feel ok that's the main thing,hope u get sorted soon, not heard of whatever it was u were told to eat lol I have manuka honey every day I'm sure that helps. Nice chatting to you.
    • Florabunda
      Florabunda marion64534

      Posted

      Hydrochloraquinone - called Plaquinel  for me. It's an anti malarial drug that helped my exhaustion a lot. The rhumies don't seem to exactly know how it works - they found out by observation of people on antimalarials it seems.

      Looking at its chemistry [hey, who said get a life?] - unless you have a chance of malaria... stopping seems fine. It has few side effects though - so I'm sticking with it ;-) The thing is, it can take several months to build up its effect so... you might notice and increase and fatigue/flares in a couple of months. Or you may be just fine :-)

       

    • kristanty
      kristanty marion64534

      Posted

      Wow, Marion.. where do you live? So lucky that the blood test is free. It is VERY expensive in my country for Lupus medicinal treatment.

      Nice chatting with you too smile

    • kristanty
      kristanty marion64534

      Posted

      Oh, about Medrol,, some people call it Methylprednisolone anw..
    • alexalyssa
      alexalyssa kristanty

      Posted

      Hi, i've came across this discussion unintentionally when i tried to research about lupus. 

      I am surprised to find that you are from Indonesia. I am Indonesian as well and would like to have a friend who understands lupus as I do.

    • kristanty
      kristanty alexalyssa

      Posted

      HiHi alexalyssa 😊😊

      i send you a private message. 

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