Not taking medicines
Posted , 5 users are following.
Hi, i'm Kris. I'm 23 years old. It's been almost 2 weeks i don't consume my medicines. And you know what, i feel nothing. I mean, i'm fine during this 2 weeks. Doctor told me to not go under a sunlight, UV is not good for me. But in this 2 weeks i exposured to sunlight a lot, and i'm okay. Does it mean i already cured from Lupus? Will simething bad happen if i don't take my medication? Actually, i fell depresed, brokenhearted, and lonely. It's like no one love me anymore, even my family. I fell sad whole day. I'm ignored, i don't know. No one understand me but i can't force them to understand me tho.
btw, sorry for my bad english. I hope you guys can get what the point is.
3 likes, 11 replies
Florabunda kristanty
Posted
Lupus is an 'up and down' disease. Things in your life - getting a cold, stress, not sleeping can 'switch on' a bad episode or 'flare'. So lupus medicines help 'smooth out' the ups and downs - so they work best when you take them all the time.
You sound stressed or depressed. Lupus can make you feel like this. Learn as much as you can about your illness on the internet - and talk to someone about how you feel.
What is your first/2nd language?
kristanty Florabunda
Posted
Thanks for your advice. Yes, i still learn about Lupus.
I live with 'normal' people everyday every hour every time. I dont have any Lupus friend in my real life. Maybe that makes me depressed and lonely and like no one else care. Poor me :D
My 1st language is Bahasa anw
marion64534 kristanty
Posted
kristanty marion64534
Posted
I begin taking my medicines again. Did u ever take medrol before? Now i take medrol and azathioprine only.
But sometimes i have headache. My doctor told me to take sibelium if i get headache. But sibelium seems doesnt work to me. It only make me yawning and sleeping all day after i eat it.
It's been long time, a year maybe, i dont check my blood test. It's expensive. Hehehe..
sophie92852 kristanty
Posted
marion64534 kristanty
Posted
Florabunda marion64534
Posted
Looking at its chemistry [hey, who said get a life?] - unless you have a chance of malaria... stopping seems fine. It has few side effects though - so I'm sticking with it ;-) The thing is, it can take several months to build up its effect so... you might notice and increase and fatigue/flares in a couple of months. Or you may be just fine :-)
kristanty marion64534
Posted
Nice chatting with you too
kristanty marion64534
Posted
alexalyssa kristanty
Posted
I am surprised to find that you are from Indonesia. I am Indonesian as well and would like to have a friend who understands lupus as I do.
kristanty alexalyssa
Posted
i send you a private message.