Not yet diagnosed properly

Hey Shabs. 

Its hard to understand and I have had issues with that myself. From my informal research, reading, and talks with many many doctors, it seems that mono/gf comes it, sneak attacks your immune system, your immune system fights it off in every part of your body (liver, spleen, brain) and when the mono is gone, your body starts to react to the fight. I talk to someone who had symptoms show up 4 months after having mono. 

Your walk reminded me when I finally got out of bed after 3 weeks. I walked around my apartment building with my son. I did four small laps and almost fell face first into the grass. I was so scared. It almost brings a tear to my eyes because my son, being 4, was so super supportive when others in my family discounted me. He kept pushing me and even said 'its ok daddy, you will get better'... I promise you, my background is no one of being in bed at all! Im a full on hardcore worker, business man and former soldier... this put me down but I feel after 6 months im getting better...

Be patient and if you ever need one on one, it helps! It really helped me.

Hey Jeff, aww your son sounds lovely  

Well I never knew all this about glandular fever until now. It's a horrible virus, but weirdly fascinating in a weird way, because it's so complex.

I had to call work and tell them the news that I'll be off for at least another 2 weeks. I just hope I get paid for being off :s 

Shabby,

That's a good thing if the test showed positive 4 weeks ago, because it confirms that the way you have been feeling is because of glandular fever / mono and not something else.

This period is a very scary one, as Jeffrey says I remember it well too, feeling totally not like myself and so exhausted and drained and just generally unwell without being able to pin point exactly how or why.

All these feelings are very normal with glandular fever, as are the enlarged and painful glands, so as horrible as the whole thing is, I don't want you worrying about it all - you should let your mind be settled that you know it is mono you have had if it showed positive 4 weeks ago and just remember it takes a while to recover from. I went through all the same emotions and horrible feelings Shabby, I wouldn't wish it on anyone and am definitely thinking of you, but the great news is that it doesn't last forever and even if it takes a few months or whatever you will recover and get back to full health - hard to accept when going through it I know, patience is soo hard and it's soo frustrating - just take it one day at a time and deal with getting through it all and getting plenty of rest and taking some good vitamins and immune boosting herbs.

Hang in there - you WILL get there I really do believe that.

Craig

Hey Craig Thank you for replying again,you've been so very helpful.

I just don't know why the young doctor I saw at first said I'd had it in the past and I may have just had a virus. I sort of refused to believe that though as I know in my heart it was mono. 

My mum is confused by what different doctors have said too, as one said I had it in the past and the one I saw today said I have it now. Unless another test result came back afterwards, I doubt it though.

I'm taking my usual vitamins, but when I have some spare money I'll buy some more  

It's such a rubbish virus. Whats weird is how it lingers, you get moments when you think you might be ok, and then it will hit you again.

Thank you

Hi, thank you for your reply.

I couldn't actually see the doctors computer screen very well. But I saw positive next to whatever she was looking at. She was looking at the Mono results anyway, I'm just not sure which result.

Looks like I have it for sure anyway. 

Thanks for clarifying for me

HI shabby, no worries!!! I hope you gain your forces soon! just stay on the bed as much as you can! 😀

Hey Shabby,

I understand it really is a frightening thing to go through, because you are dealing with all sorts of physical, mental and emotional symptoms at the same time. Whilst I'm afraid I don't have the same skills as Mono in interpreting blood test results, I definitely think you should be reassured and put your mind at rest that it does appear to be mono, because it gives an explanation to why you have been feeling so unwell and it makes sense, and we know from the wealth of experience on here that what you are going through is the worst phase and that you will recover and get stronger and fully healthy again.

So my main message to you today, and I know it's far far easier said than done, is to do your best not to worry! It's hard to accept when going through I know, if you are able to just live a simple life with plenty of rest and vitamins and reducing stress then you are doing everything you can. But also do things to take your mind off it, whilst not overdoing things it's still good to see friends and do things that help you relax - too much time at home and to think is not always good - you need that when recovering unfortunately but still try to get some fresh air so long as you're not overdoing it.

Things are going to get much better for you Shabby, I really believe that without any doubt!! Just so sorry you've had to go through this just now but you will definitely get over it and have lots of good times to look forward to again once through this difficult period.

Take care and remember you can message any time not feeling great.

Happy New Year to you when it comes - this will be the year when things get better (but again patience is the key if it doesn't come right away it doesn't mean it won't come - it can be normal to take a bit of time).

Craig 

Thank you Craig. Thank you for your well explained replies

I had a very bad day today, slept most of it though. The mental part of the virus is really shocking, something I didn't expect. 

I'm very sensitive to noise as well. 

I hope you have a Happy New Year  

Hi Shabby,

Oh Happy New Year to you also, it might not start off great with this horrible virus but it will get better trust me so it will be a good year given a bit of time!

Yes the mental part is very hard to deal with, I found it exactly the same because you don't know what's happening to your body and why and when it will stop and it is very frightening. Rest assured though that all this will pass, this is the worst phase just now and hopefully once the spring comes in again you will be certainly starting to feel more like yourself again, the winter is hard to get through also.

Thinking of you and remember not to lose hope because things are going to get better for you this year

Craig

Hi Craig 

I just wanted to thank you for all your kind words on here to me and everyone else as I still read them from time to time when I'm feeling low. The past couple months I've really improved energy wise but recently been diagnosed with tonsillitis and it's like I've come crashing down and back to square one when I was kinda nearly having normal life apart from being able to exercise like I used to. I just am scared of this tonsillitis affecting my recovery! 

I hope you are doing very well and I hope you're having a brilliant start to your new year! 

Many Thanks for all your help over the past few months,

Georgie x

Hi Shabby,

I'm so so sorry you're experiencing these horrible thoughts, as I too went through all of these horrible depressive episodes and was considering anti-depressants myself but the support of others and amazing people like Craig will honestly get you through it all. You are way stronger than you think and don't let this virus ruin your life as you life is way way way more than that! 

Happy New Year,

Georgie x

Hi Georgie,

Thanks for the kind words, I really appreciate them, and I'm sorry to hear that tonsillitis has hit and is making you feel unwell again. This will just be a blip, overall it's positive that you had been feeling on the road to recovery, sometimes because your system is hit so hard with glandular fever then other things can hit when recovering, but be assured it won't de-rail your overall recovery, this I hope and believe will just be a short term thing, it must be so frustrating I know I'm really thinking about you and do still fully believe you will recover completely and get back to your exercise again in time.

Hang in there, take things slowly and continue to listen to your body - you are definitely on the right road Georgie and it shows me how lovely a person you are that despite not feeling well yourself you have taken the time to come on here and given kind words of hope and encouragement to others. You WILL get better, and this WILL be a much better year for you, keep believing

Take care and thinking of you

Craig

Hi Georgie, I've only just noticed your message 😬 I know Craig has been so amazing, he's a blessing to this forum

I hope you're better after having GF.

Happy belated new year to you too and to everyone in here