Not yet diagnosed properly

Hello everyone,

Just want to give you an update on my health!

Well I feel better than last month. My fatigue is almost gone, not feeling perfect but this month I've been having more good days, sometimes I don't feel good during some days, but as I said before I've been feeling better!

And yeah when it's hot and humid I don't feel good and my fatigue comes back...so I just relax...the quality of my sleep is not really good, probably the reason for which I get tired easily.

I'm so grateful for being able to do much more... I keep saying thank you thank you I'm so grateful lol here I sound crazy 😂😂😂

Hoping for the full recovery in the next few weeks!!! FOR EVERYONE ON THIS FORUM! I'm always thinking about you all...THANKS to all of you for supporting one another.

Niky.

P.s.it all happened over a night, when I woke up I felt like my fatigue was gone 😰 I believe we can turn back to our normal lives.

Hi Nicky and everyone. It is great to hear that most of us are improving. I think of you all often and faithfully pray for complete recovery for everyone of us including your daughter mono. 

It is so good to have hours that I feel normal! I am also thankful for each of your progress! God cares and is no stranger to suffering!

I too find myself just repeating thank you Lord! I will never again take health for granted. It is truly a blessing! This forum has been such an encouragement offering hope. Thanks to each of you and espically you Craig for your faithfullness.

I believe in the sun even when it is not shining . I believe in Love even when I cannot feel it. I believe in God even when He is silent! May we all find assurance in that God will help, strengthen, and uphold us by His Righteous Right Hand! 

Blessings to you all! We all will be back to full health! I doubt that we will ever be back to what we would call "normal" because I believe we will all have a deeper gratitide for our healty!

Rhonda

Hi Rhonda,

Thank you for your thoughts and prayers, I have been having a couple of down days and am trying to rest, but appreciate every good day. I am glad that you are feeling better. I have been wondering how everyone was and am glad to hear recovery stories. I pray for my daughters recovery daily, she has had such a hard time with the virus and has been sick since November, she is not as tired but still very ill. She would love to hear recovery stories as we are trying to stay positive.

Hey everyone,

It is amazing to hear that things are on the up for you Nicky and Rhonda, that is great news and you are right Nicky it can seem to happen like that almost like a switch overnight - it was kind of similar for me if not so dramatic as that, but feeling like you were hovering at the same level of struggles for months on end and then all of a sudden in a very short space of time you made really progress forward.

Without trying to get too technical (I'm nowhere near knowledgeable enough on the subject to), I read somewhere once that the EBV virus takes so long to recover from because if you imagine a normal virus, like say just a minor cold, say the virus is a square shape, then your body will make an antibody to fit the square and that will then nullify it. Well with glandular fever, seemingly, if the virus is a square shape, your body makes the antibody for a square shape and then by the time it's done that the virus has changed to a circle shape, then it makes antibody for circle and it changes to another shape, and so on. BUT, somewhere down the line it trips itself up because it changes back to one of its earlier shapes and your body already has the antibody made and can then actually nullify it.

Maybe someone who is more technical than me can tell me if that's true or not or just a nice wee story, but I did read something medical to that effect - and it would seem to fit with the theory that you can struggle for a long time with it then all of a sudden get better in a short space of time.

Anyway, sorry for digressing, I'm thinking of you all still and Mono especially for your daughter's recovery, I really do still fully believe she will make a full recovery, there is plenty to be hopeful about and I believe she has weathered the worst and that kind of sudden step forward for her is much closer than it might feel.

I'm struggling with some nasty back pain at the moment, also grateful if anyone can keep me in their thoughts and prayers too with this!

Take care and great to hear from you all

Craig

Hi Craig,

So sorry to hear you are having back pain, hope and prayers for a speedy recovery.

You have been such an inspiration to us. I have been better the last two months and then two days ago started feeling blah again, hoping to feel better soon.

Hey Mono,

Don't want you to worry, those last few days not feeling the best will just be a temporary blip, you're still on the road to a full recovery I can feel it and truly believe it. And I believe the same is true for your daughter too, even though it may seem further away for her just now, it's much much closer than you and her think. I believe God is guiding me in those words.

Thanks for your best wishes for me too Mono, it means so much to me as I'm struggling a bit just now. Am grateful for the good will and kindess of everyone on this site, it is a source of help and strength to me in tough times too and just want to thank you and everyone also for that.

Craig

Hi Craig,

Thank you for the encouragement, it is so scary when those feelings come back, general malaise, no appetite and nausea. Hoping to feel better soon.

Thanks for the info. I pray that your back will get better. Thank you and everyone on this site for your stories and wisdom about this virus. I am slowly seeing improvements. I pray that everyone will make a full recovery. This has changed the way I look at life and my health. I took my health for granted. I have always been healthy until this. I hope everyone is doing well.

Hi Brent / Mono,

Thanks so much for the uplifiting word, I really needed them today and am grateful for that. Having a really tough time with my back, thanks so much for praying for Brent I'm so grateful and it means so much. Also praying for recovery for you Brent and for you and your daughter also Mono, and thinking of you both.

You're right Brent it's so easy to take everything for granted when everything is going fine, we all do it, I've been especially guilty. Just hoping God can have mercy and grace and bring healing to us all in Jesus' name. I believe that He will, because He is amazingly good God.

Craig

HI craig,

Thanks alot! I want you to know that I still remember all the positive things that you said, in fact every once in a while I go back to the beginning of this forum and start reading all the messages to remind myself that we all have been through one of the worst things that an adult can experience, specially if you have to work! This forum has helped me alot, here in this place I felt understood and secure in the worst moments of my life!

BUT! Things are getting better for everyone, I'm sooooo happy for that, this joy is just of a different kind!

You've always been there for all of us! With your positivness you've helped us to come over our anxiety and depression! Here I once again want to thank you for being a true human being!!!

To all of you out there, I hope you're doing better, we're reaching the tip of the mountain! Now our bodies are getting back to normal, might yet take a bit of time! But hey we've waited a long time... For me it's been since November 16th! I can't believe we're getting close to august!

I remember when I was told that it'd take at least 8 to 9 months to feel a bit normal, I got so scared and anxious ( specially from a financial point of view, because I couldn't even get to the toilet in the beginning of it all and I live so far from my family and they didn't know anything about this until 1 month ago when I went for a visit which shocked them as I was shrunk to a skeleton lol, I really didn't want to make them worry for me).

I'm so grateful, words can't describe my feelings, I'm getting back to my normal life... It's amazing, seemed impossible! Til a few days ago...this mono has changed my personality too, I don't know about you, but I'm sure about mine!!!

I really hope from depth of my heart that all of you recover fully, I believe we all can make it through! So please stay strong!

I don't know if shabby reads these messages anymore, but if you do please let us know how you are doing!

Wish everyone a week full of joy and health, may the creator keep us safe under his protection!

Niky

You are correct about personality changes. It has happened to me. I don't feel like I am the same person. I also have worked through most of this. I feel like I am starting to get better. It is a long process. I didn't want anyone to know because I was ashamed of what people would say. I am 48 with mono. I am finally learning to accept my situation and let go and let God. I wish I would have rested more, but I guess that is the curse of being a driven person. I hope everyone the best. I am starting a new life because of a divorce and this is a hell of a way to get started. I want to thank everyone on this site. God bless.

Hi Nicky / Brent,

So glad you are feeling stronger Nicky, it is a wonderful feeling when you feel God working and bringing restoration and health in your life, remember it's God who does that and praise Him for that! Just hoping that things continue to get better day by day, stll take things slowly whilst recovering.

Brent you hit the nail on the head we need to let go and let God with our troubles. I'm guilty of not being so good at that too, trying to be better in that way, it's great to know we can totally and fully rely on God to help us even in our darkest moment and deepest hole. Don't beat yourself up at all things going to get better Brent, I fully believe that for you, without any doubt whatsoever, hang in there. There is plenty of hope today, thanks to Jesus.

Craig

Hey, I'm new on this thread, I'm in bed so,I thought I'd take comfort and read some of the conversation on here.

this was my 40th birthday present, yep I woke up on my birthday with a sore throat last oct 2016, and was diagnosed dec2016, so I would say this is my ninth month of gf, and I can relate to EVERYTHING you all mention.

Nicky, it's gives me great belief that I may just wake up and it's really, really truly gone. I know I am slowly getter better, but it's slow and I'm properly fed up (like we all are) I know we all recover differently, but I do dream of that miraculous revovery!!

thinking of you all.....I'm glad I'm not alone with this. It helps a lot as I think all my friends are carrying on with their lives and they just don't understand how hard it is, unless you've had it!

caroline xxx

 

Hi Caroline,

I also got sick in late October 2016 an my daughter a month later, it is so hard to deal with, I was feeling better months 6-9 and then I had a minor relapse, similar symptoms but lighter, my daughter has been sick the entire time. 

What improvements have you noticed?

 

Hi mono,  I cannot believe how hard that must have been and still is for you and your daughter, that is just so not fair. 

I had about 4 weeks in April when I thought that's it, I'm finally over it and I was walking the dog each morning and shopping etc( still fatigued, off work and in bed at 7pm every night) but I thought it was over, then wham it just all came back. That was really hard to take.i felt back to square one.

im extremely tired, very emotional, have a constant sore throat, burning thighs. Nausea and weight GAIN! 

i am definately very slowly getting better. I've spent most of the day in bed today, but the nastiness seemed to lift about 3pm and all of a sudden I felt a bit better.

my friends daughter (15) has also got it, she had jaundice, extreme weight loss, ulcers.... The list goes on and she is still recovering, she sleeps a lot in the day whereas I don't.

would you say you are better now????

caroline xx

Hi Caroline,

Yes, I am better than I was, but think i overdid it when I felt better, so I am back to taking it easy. I have noticed that I feel better at night also. I still tire easily. Hopefully this is going away for all of us.

 

Hi mono, yes, I definately over did it in April..... but I found it hard to take it easy, something I'm learning to do! hard with three  young children, but something that I have to do.😳

We are slowly getting there I'm sure of it. Thanks for replying, the support really helps and I feel that this is normal to take this long!

keep in touch x

Thinking of you Caroline and Mono...just hoping that things can improve soon. Still believing in that for you. I'm struggling a bit too with back pain. It's hard when coping with things, it really is. Asking God to help us all together and give us strength, peace and healing in our lives.

Craig

Hi Craig, back pain is a misery too. My mum suffered dreadfully a few years back, she was crawling to the toilet!  She rested and moved quite frequently as to not get stiff. Get well soon xx

Thank you Caroline, I really appreciated those words when feeling like this with my back.I hope that your mum is doing better now. Still thinking about you and rooting for you.

Craig

Hi Craig,

I am sorry to hear your back is still bothering you, hope and prayers for a speedy recovery.

Thanks so much Mono, your words and prayers really mean a lot to me at this time, just hoping for better times ahead for us all. Keeping you and your daughter and wider family in my prayers also.

Craig