Nothing helping with IBS - Please help
Posted , 7 users are following.
Hi All,
I seem to have constant IBS, on top of that I've got GERD as well and trying to eat for both - though to be fair I think one can cause the other.
I'm eating pretty much nothing, I"m alway starving.
No bread, pasta, no onions, tomato, cheese, diary - though I am drinking milk.
I do eat Oats but that's the only grains I'm having - otherwise it's Paleo/AIP Paloe diet plus low fod map and trying to avoid GERD foods too. It's ridiculous.
My poop is always no 5 on the bristol chart, or constipated and occasionaly runny. I've had this though for years, I get maybe one or two days a year where it's a nice poop, you know the types .. no 4 feels great and clean. ha ha - sorry.
I'm at my wits end. The Dr wont refer me to a Gastro DR because it's not serious and they are under staffed etc in New Zealand.
I tried to get my stomach checked but again they wont as they don't think it's serious. I have stomach aches after eating something as benign as watermelon!!!! Sometimes water gives me GERD.
I'm a single mum, limiting to my diet to nothing, not even sure if I'm doing it right, everything tells me to do something different.
I eat salads, then I get told not to eat salads, potato then don't eat potato - I"m at my wits end I just want a normal bowel please!!
Any help would be so grateful.
0 likes, 19 replies
kinder145101
Posted
michellelvj kinder145101
Posted
kinder145101 michellelvj
Posted
I went to see a Naturopath but she was terrible.
I, like you, feel like I'm well informed but again I get really stuck and eating now stresses me out!
I guess I should go see a dietician and just pay the cost?
michellelvj kinder145101
Posted
kinder145101 michellelvj
Posted
Thanks though - good advice, go see someone.
I'm trying so hard to do the right thing, but I'm always bloody starving as I can't eat carbs which I normally eat, I don;t want to lose anymore weight as I'm on the light side already plus I feed my darling 3 year old normal foods whilst I"m eating a silly bird food mela which doesn't seem to help anyway!
kinder145101
Posted
I'm eating that food and i don't care, i'm over this!
Will update you tomorrow ha ha .- ps AND I'M GOING TO HAVE COFFEE!
kinder145101
Posted
Do you avoid pasta, I've got the IBS book and tells me to eat Pasta! No way I can do that - or bread ... really irritates my stomach and what the hell causes IBS anyway!!! If everything is clear why do I have it?
michellelvj kinder145101
Posted
I eat brown rice pasta, which is gluten free. It is much better than the normal gluten free pasta as it doesn't get sticky. It tastes like regular pasta to me and is hugely satisfying. Can you eat rice? Not a huge bread fan generally anyway and don't like the gluten free stuff. But sourdough is meant to be better for IBS. You should download the Monash app. It is an aussie smat phone app from the uni Dr Sue Shepherd (founder of the low fodmap diet worked at. It is great for planning out low fodmap options and has lists of products and foods that are better to eat. My GP never bothered to tell me about it but my dietician did. It has been helpful as you have it right there in the supermarket. Makes life so much easier. Keep me updated and let me know if you have any other questions. I am not an expert but I can tell you my own experience. Xx
kinder145101 michellelvj
Posted
michellelvj kinder145101
Posted
I still have discomfort daily but I have much better control of my symptoms and CBT for the anxiety has helped too. Slowly getting back to a place where IBS doesn't dominate my every waking thought! But yes, I wish like you I could wave a wand and make it go away. Sending you good thoughts and keep me up to date with stuff. Talking to someone who gets it definitely helps! Xx
carolyn32842 kinder145101
Posted
I am new to this forum but just read your messages. Like you I am fed up with the excruciating pain in upper abdomen, feeling full all the time and cant eat so have been put on fortisips (Strawberry flavour 300 cals per drink). I have lost a stone in the last year. Been dismissed after loads of tests from my local hospital after being told there was nothing sinister showing, then referred to a neurogastroenteroligist who was a professor but could only prescribe Duloxetine and Pregabalin which spaced me out but didnt help with my problems. Finally had a second opinion in December from a hospital outside my area. Had an MRCP/EUS on Christmas eve and a Thorax to Pelvis CT Scan on New Years eve. Made Christmas meal for all the family and I drank a fortisip and took morphine. Still in excruciating pain, intermittent constipation/loose bowels and cant eat. Tests have come back normal so I have been told I have severe chronic IBS, gastritis, non ulcer dyspepsia and pockets of diverculictum. What the h..l. Functional Gastrointestinal Disorder is being banded about. I dont think there is enough help other than meds which kill the brain to kill the pain. I could manage pain control but nothing helps with the horrendous full feeling and not being able to eat. Cant go out for meals, or even drive my car due to being spaced with the pain meds. Get up on a morning and struggle to get through the day. Wish there was some help. Dr going to refer me to a dietician but dont know when.
Anyone have any answers would be greatly appreciated.
kinder145101 carolyn32842
Posted
wow let me just say, I'm sorry to hear that - my symptoms are not as intense as what you describe but I bet you my frustration is.
It's so hard, as answers would be great, why it happens, what in particular makes it happen, what to do?
Instead the people of authority in the matter give you drugs which might help one part but then end up harming another!
Surely someone must have the answers.
What I kow - the brain and gut are connected.
They call the gut the second brain .... we have nerves in our gut that react to how we are feeling. sometimes I can eat burgers and drink coffee and I'm totally fine, other days I can't even eat lettuce or drink water.
Where is the corrrelation?
I know I"m not helping, but surely someone can answer this!
Why do I have IBS? Why does Carolyn have it and Michelle and how do we get rid of it...... anyone?!
meg29650 carolyn32842
Posted
Just to let you know I am think of you. There's no reason why people should suffer such pain in this day and age. Met some of the nicest and worst doctors in the hospital so far, but no answers.
hargoni kinder145101
Posted
Don't drink milk in case you have lactose issues. Buy either lactose free or soy type milk. Drink reasonable amounts of water.
No coffee, no sugar, no soda, no chips and no dairy. Add one ingredient each week. For example, you could make mashed potatoes in week two with milk or cream. The following week you could add some parmesan.
Garlic can help your digestive system. Use it in the water to boil the chicken. Don't eat the chicken skin or fatty tissue.
The fourth or fifth week, add toast.
The sixth week add tea, not coffee.
One ingredient per week, monitor, have a bad week - delete the new ingredient.
Low acid, moderate fat, starch and later fiber. A good add for week 3+ is carrot.
kinder145101 hargoni
Posted
Does that means it's either potatoes or chicken... see how confused it can be?
Why isn't there a blood test that can tell you what causes you gut distress? Good advice though Hargoni.