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I would be grateful to anyone that might have any ideas for me! I have a severe case of lichen sclerosus. I have fusing of the labia minor with the clitoris hood, and the fusing is progressing. I have intense, unbearable itch, especially in the middle of the night which makes me tired and sore when I wake up in the morning. It is making my life pretty unpleasant. My gynecologist told me I was too severe and agreed with my previous gynecologist that I need to go to UCLA for more specialized help. The itch and fusing are progressing. The typical clobetasol and estrace are not working. I have filed an appeal with my insurance company to see a lichen sclerosus specialist at UCLA who does compounding till the right steroids work. My gynecologists also suggested CO2 lazer and light therapy at UCLA. Thanks for listening. By the way, the clobetasol used to work for me a few years back when I was first diagnosed but then stopped working for me. Perhaps it was due to my going through menopause?
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