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Hi everyone. Just joined and wanted to intro myself. I actually retired from a career as a military physician (family med) last year and started teaching. Mostly staying home to take care of a family medical issue.
I've had chronic recurring UTIs since I was in my early 20s.... maybe 15 since then (Im a 42 yo female in the US... couldn't find an American support group this big). This year, gotten especially bad, with one after another, mostly treated with Macrobid/Nitrofurantin, always E coli. I saw a specialist in my 20s, who did the full workup, including cystoscopy, flow studies, contrast imaging, etc. Found nothing unusual anatomically back then. Now with my recurring UTIs getting worse, I'm set to see another urologist tomorrow.
Very frustrating having lots of book knowledge (and seeing similar in patients in the past) but not being able to help myself. I've found that sometimes patients are more familiar with some diseases than some doctors, just from personal experience. But it is frustrating because as scientists, we are trained not to put too much weight on anecdotal evidence (often for good reason). A good example of this is D-mannose. There is a ton of accumulating evidence that it works well, few side effects, yet many of my colleagues don't even know about it. I have only recently come across it myself and bought a bottle this morning. There is good science behind it and I wish I had discovered it sooner. I'm at the point where I am getting desperate for any leads on other preventative measures. Has anyone tried Goldenseal? Any other ideas beyond the common tips (hygiene, peeing with sex, hydration, vitamin C/cranberry, etc)?
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