Now been prescribed prednisolone steroid tablets - anyone have experience with these?
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Hi folks, update:
Saw dermatologist today and she admitted it is spreading badly over my body, sides, back,chest, tops of arms, groin... Initially she suggested light therapy, 3 times a week about 30 to 40 sessions! This isn't viable at the moment do to work commitments etc... So now I've been prescribed prednisolone steroid tablets, 30mg a day for 4 weeks. Reading the side effects is scary stuff! But I'm already suffering from stress, depression and anxiety so what have I to lose!! Has anyone else been prescribed this medication for LS?
Thanks again for the support and my next step tomorrow is to organise some counselling for the depression that this condition is causing.
I sympathise with everyone one here, this is a dreadful thing to have to live with.
0 likes, 7 replies
jenny99721 andrew2527
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eyebtwinkle andrew2527
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lynne1945 eyebtwinkle
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The worst reactions of mouth blisters I had is with curry no matter how mild. Huge blisters, lesions, lumps like peas under the skin along inside of lower mouth. Skin wherever I have had a cut or an insect bite or an old scar burns like fire. Marks from sitting on the loo look like I have been sliced by a knife but are just the edge of the toilet seat. Burning lips and horrid metallic taste. As well as the prednisone I am on orally I also take steroid mouth washes Betnosol 0.5 mgms. Try kumera or sweet potatoes instead of potatoes. If I only eat at home I am fine, diet is limited, but you get used to it and it's great when you get relief. My symptoms last two days and are nasty after nightshades
your problem sounds very bad eyebtwinkle and I am sorry for your discomfort.
I have gone overboard with the diet thing trying to find the magic baddie. Not only the nightshades but the sugar gluten, dairy, coffee, alcohol, every morsel of food was clean, no packets or ready made jars.home grown vega or organic. Most fruit eliminated. Did the FODMAPS diet as well due to IBS. Ended up with eggs, gluten and dairy free bread and bread products, some vegetables, banana and blueberry smoothies with supplements, salmon, fish and meats, avocado by the hundreds, peppermint tea, nuts and seeds. Lost three stone in seven months. No wonder! My scalp is less itchy lately, it was driving me mad and spots on my hands and feet felt like mosquito larvae were hatching there and eating there way out!
Its so hard to get the right thing ...
Morrell1951 andrew2527
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lynne1945 andrew2527
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From experience re the Prednisone,
I am on a course of it now. I have Lichen Planus, a close cousin to LS and in the usual ladies region and now involving mouth, scalp and skin. The usual steroid cream did not work for me so I am prescribed a much less potent cream and while we wait to see how it settles down (my dermatologist and I) she prescribed me Prednisone. Commenced with 40 mgms. I won't go into the side effects, you know them, and many things influence them. For one thing, I am much older than you and have other medical conditions. So it's relative. But you won't be stopping them cold after four weeks, I can guarantee that!
30 mgms is a very large dose and you will feel no pain and be comfortable on them. But Prednisone must be tapered very gradually from the body or the side effects from the stopping cold will be more dire than the drug itself.
Talk to your doctor, who you maybe misunderstood?
I started Prednisone in late November and my tapering has taken to the present time to 4 mgms daily, and I have another two months to taper down to nothing.
Yes, I too have depression and ongoing counselling, which is helpful. It's been over a year for me, though initially diagnosed with LS I was finally given LP as a final diagnosis in November. Same difference. It still sucks.
It's a long road Andrew, and we all know it on this forum. Glad you're going the counselling route. Stress exacerbates everything.
How are you doing with your cutting out sugar? Did you try any other dietary restrictions or eliminations? Nil sugar helped me I really believe.
Good luck with it all.
Guppy007 andrew2527
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Jessicat andrew2527
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