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Now I have osteoporosis!

Posted , 11 users are following.

karenjaninaz
karenjaninaz

When first diagnosed with pmr 3 years ago my bone density showed osteopenia and my rheumatologist wanted me on fosamax. AFTER 3 weeks I couldn't STAND IT AND my BITE AND TEETH MOVED. So I STUCK WITH THE CALCIUM BUT NOT MUCH VIT d. The hip bursitis was really troublesome before I was diagnosed with pmr; I had many steroid hip injections.

Yesterday my bone density showed the above diagnosis. I HAVE BEEN TAKING THE MICRONUTRIENT protocol as described in a successful study which actually reversed osteoporosis after one year. I have only been trying that protocol for less than 6 months with my rheumy's approval. NOW i am wondering if I should try FORTEO or just continue with the protocol . I am exercising as much as I can with the easy fatiguability. I am tapering to 8.5 currently.

There was a period of time when I COULD HARDLY EXERCISE BECAUSE OF bilateral bursitis and reactive airway disease.

ANY ideas?

0 likes, 19 replies

19 Replies

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  • Duffer55
    Duffer55 karenjaninaz

    Posted

    i was just prescribed alendronate 70 mg to take 1 time a week. i do not plan on taking it until i research it more. any thoughts?

    • Duffer55
      Duffer55

      Posted

      i should add generic fir fosamax

    • EileenH
      EileenH Duffer55

      Posted

      Refuse to take it until you have had a dexascan and know if you need it now - if you have normal range bone density you don't. If it does fall while on pred that MAY change but despite what the company that markets it says, it should NOT be used prophylactically. There is a lot of good info to be found over on the HealthUnlocked PMRGCA forum - especially today's posts!!

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