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Hey guys and gals,
Just wanted some advice from people who understand this condition and people who have/are at the same stage as me.
My symptoms started just over 1 year ago now and to date I really haven't much progress and still waiting for my appointment for the cfs/me clinic where I am hoping to be able to talk through all my issues with someone who understands as so far nobody I speak to has any idea of what is going on with me.
I had an occupation health meeting last Thursday where she has documented that she wants my gp to refer me to a neurologist as my left arm and leg are really playing me up, I cannot do some of the tests with the left side as well as I can on the right and most the muscle pain I get in on the left side. I am waiting on the report from this to come through to be able to speak to work about what we can try to ensure that I don't end up going off sick again.
I have been in and out of work since last February and thankfully all the time I have had off has been paid. However this month my pay has been cut in half; I knew this was eventually going to happen but it has hit me hard as now I am realising how much this is effecting everything.
I am now at a stage where I am trying to prioritise my bills and it is so hard, i can feel the stress is starting to have an effect on me and I can't stop worrying about everything from my finances to my career and it seems that everything in my life is no longer in my control and it is hurting so much. I know that my job is hanging by a thred and I don't know what I am going to do if I lose it.
Has anyone dealt with this and what did you do? I don't know where to start and it is making me feel so down and I don't want this to start setting me back as I am just starting to feel that I can start looking into a phased return to work.
Any advice would be highly appreciated.
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