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Now positive I have motor neurone disease

Posted , 5 users are following.

emily52713
emily52713

Okay so the past few weeks I've been convinced I have a brain tumour, and then the last couple of days it's been an aneurysm. Then because of my left side feeling a little weak, and now my right side of my face I'm convinced I have motor nuerone disease......this time I'm positive because things are not getting better for me. I can't go to the doctors AGAIN because I've been so many times , so I have to wait for the pedriatocs on 12th December which is ages away!

1 like, 19 replies

19 Replies

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  • Annmarie27
    Annmarie27 emily52713

    Posted

    Hi Emily

    I know how you feel, I feel for you I really do. The past couple of months I have imagined I have every illness known to man. Do you have support from a mental health profesional? Maybe some counselling will help. Tell your doctor all what you are feeling, even if you are scared. I have been to the doctor countless times over the past 3 weeks and have now been put in touch with a mental health team, direct phone numbers I can use when I'm feeling anxious and am being set up with counselling soon. Keep bugging the doctors if you feel they are not listening, help is out there you just have to be persistent. Anxiety is a scary and terrible thing, but learning to accept that it is just anxiety and not something terrible makes it a bit easier to handle. If you ever need to talk, I am here. I wish you all the best, take care.

    Love Annmarie x

    • tonya46846
      tonya46846 Annmarie27

      Posted

      Just tell yourself that anxiety/panic attacks won't kill us.. The more you worry the worse it gets.. Are both of you on any meds? 
    • emily52713
      emily52713 Annmarie27

      Posted

      Thankyou, the problem is with me is that I don't believe it is anxiety, so I'm looking for reasons and illnesses to blame.. I am  having counselling (CBT) and I've had my aseessment done for it which was pretty nerve wracking to tell them everything that's in my head. My mum says I'm fine so she will not book me another appointment with the doctor
    • emily52713
      emily52713 tonya46846

      Posted

      Also I'm taking proponalol which does help for panic attacks 
    • emily52713
      emily52713 tonya46846

      Posted

      Ye, I used to have heart pounding especially at night followed by a panic attack and it's only very rearley that the heart pounding will happen now
    • Annmarie27
      Annmarie27 emily52713

      Posted

      It is very hard to handle that all these symptoms are caused just by anxiety, but they are. When I first got anxiety I thought I was dying. I just thought anxiety was a case of I'll just calm myself down, I'll be fine. It is an awful thing to deal with. I had a fear of opening up to doctors as well, because I thought I would be sectioned, which would never happen. Hopefully your counselling will make you feel a bit better in time. I feel a bit better now I have started opening up.

       

    • emily52713
      emily52713 Annmarie27

      Posted

      Yes, I did feel better opening up to the counsellor,even thouhgh it lasts for about 2 days and then I'm back to square one again. It just doesn't feel right with the weak left side if anything it feels numb and shaky constantly and now my right side of my face is like it. So that's why I'm convinced I have MND. 
    • Annmarie27
      Annmarie27 emily52713

      Posted

      I had something like this last week and though I was having a stroke.  If you can't be convinced maybe take a trip to the a&e just to put your mind at rest. I know you feel bad for going to the doctors so often. But sometimes it just takes a wee bit of reassurance from the doctor to feel better.
    • emily52713
      emily52713 Annmarie27

      Posted

      Yeah I'm going to try and go this week sometime hopefully to try and get this sorted 
  • Annmarie27
    Annmarie27 emily52713

    Posted

    I am on Mitrazipine 30mg which seems to be helping although the first few days were hell. Been taking diazapam last few nights as well although this is a temporary thing.
    • tonya46846
      tonya46846 Annmarie27

      Posted

      How long have you been taking mitrazipine? I'm on day 3 of lexapro but I'm taking it at night now due to side effect of being very sleepy and foggy head. 
    • Annmarie27
      Annmarie27 tonya46846

      Posted

      2 weeks. First week was awful brain zaps, tiredness. Easing off a bit now though.
    • tonya46846
      tonya46846 Annmarie27

      Posted

      I get blurry vision too. I'm gonna push thru it cause I can see a slight difference already.. Do you take the Valium too?
    • Annmarie27
      Annmarie27 tonya46846

      Posted

      I've only had valium twice.and that was when was I was in an absolute state and went to a&e with panic attacks and bad thoughts. They do help but I can understand why they could be addictive.
    • tonya46846
      tonya46846 Annmarie27

      Posted

      I was on ativan for over a year and had no trouble coming off it.. I think if you abuse it than it will be addicting.. My ativan help when needed.. Mines only 0.5mg. I just started taking them in late September
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