1. Community
  2. Gut, bowel and stomach
  3. Irritable Bowel Syndrome

Now what do I do?

Posted , 4 users are following.

sam18386
sam18386

Hi people who sit on here. I've just about had enough! I went to see my doctor earlier as coeliac disease has been flagged on one of my blood tests. I have been told to see gastroenterology at the hospital but feel like I'm going round a vicious circle. What do they do to test for this? What do I need to do to prepare for it? They said a camera and biopsies. I am now really fed up. Tried this before and was told this was just IBS. Can anyone please shed any light on this?

0 likes, 13 replies

13 Replies

  • turkey
    turkey sam18386

    Posted

    Hi Sam if a blood test says you have celiac then I'm surprised they are doing the camera unless making sure diagnosis is correct. When I had colonoscopy I had to take a drink to clear my bowels for camera. Mine cane back IBS. I would happily have celiac and not ibs. If I could cut out gluten and wheat and get no more symptoms I would have a far better life. IBS is a nightmare for me.

    Hope you get it resolved try not to worry stress makes it all worse.

    • sam18386
      sam18386 turkey

      Posted

      Hi Turkey, I agree it's a nightmare living with IBS. I would just finally know what this is. Thanks for your support.

  • patricia73666
    patricia73666 sam18386

    Posted

    I have had ibs for years but its gotten so much worse.. I had a three month go with it last fall and I have had it again most of this summer.. saw my gastro and all he did was say take ibgard and follow some diet which nothing on it is any good .. I am basically not eating much at all or going anywhere.. its been a long miserable summer.. I hope u all feel better
    • sam18386
      sam18386 patricia73666

      Posted

      Oh really that's really interesting. I think I don't have coeliac disease but am a bit unsure. We're having final tests to rule it in or out. If it's IBS then the doctors will need do something, if it's coeliac disease then the dietitian's and the doctors will need to do something. I think the summer and excess levels of stress have really upset my IBS. Who knows? All I know is I'm sick of feeling ill and not working.

  • patricia73666
    patricia73666 sam18386

    Posted

    I sure understand your pain .. its depressing .. I am not working anymore I am retired and its so over whelming . I have an appt with the heart dr tomorrow and pray I will be okay to go  then then the next day I have an appt with a uro gynocologist and pray he can examine me with no issues.. I pray we all will be better soon 
    • sam18386
      sam18386 patricia73666

      Posted

      I can totally understand you. I'm only 45, I need to work so we can move to adopt I might then feel part of society, some day. IBS stinks or whatever else this is. Do you know if being so ill makes you depressed? I have been offered antidepressants but refused them in favour of counselling instead. I just want to know why my health is so bad that's all. The summer has wreaked havoc with my IBS and because I've got so ill my doctor has asked for more tests to rule in or rule out coeliac disease. I wish you luck, you wish me luck.

  • patricia73666
    patricia73666 sam18386

    Posted

    Yes I am depressed for sure .I am usually full of energy and on the go .. I take Wellbutrin for depression but I dont feel it helps at all.. i will  pray for you Sam.. to get answers and get better 
    • sam18386
      sam18386 patricia73666

      Posted

      I feel for you, I'll pray for you, you pray for me. I go to a counsellor who specialises in PTSD, which I was diagnosed with years back, she called a pshcoldynamic counsellor, so she deals with emotions on top of your mindset, it's hard to adjust to but I'm really specific, I was raped twice when I was younger so need a different sort of support, but through her support and yoga I am really slowly getting there.

  • taniiee
    taniiee sam18386

    Posted

    You'll have a colonoscopy. It's an easy process, you'll be sedated but what's challenging is that you'll have to drink some ewww stuff to clean your colon.

    Good luck!

    • turkey
      turkey sam18386

      Posted

      Don't be scared just stay near a toilet when taking the drink. It is the best way to know if there any underlying issues. Hope all goes well.

    • sam18386
      sam18386 turkey

      Posted

      Thanks Turkey, I've had it before, I took baby wipes with me and used those and not toilet roll. I need to know what this is.

    • turkey
      turkey sam18386

      Posted

      Hopefully it won't be anything. Even if it is celiac I have a friend with kit and as long as she avoids gluten and wheat she has no problems with her stomach. Her life has changed completely for the better since her diagnosis. Good luck let me know how you get on

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.