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I haven't posted in a while, partly because I've been so sick and also had forgot password and was incredibly down, possibly still am.
My bronchieactisis has gotten worse which it's now classes as severe bronchieactisis but also I know I have pseaudomonas and also had another bacteria. But I still dropped over 12kg over December /January and had shocking sweats all day which was pure salty so they tested again and found another bacteria called NTM non tuberculosis mycobacterium which is one that can't be irradicated and requires intensive treatment this was a week ago and in that time was hospitalised on weekend as was coughing a lot of blood and chest pain so they found an abscess near heart on lungs the size of plum.
Has anyone heard of NTM in this group ? And is battling it ? as I'm the only one in my hospital being treated for it, and it has five lots of antibiotics twice a day to start and they have shocking side effects and most don't tolerate them.
some may know of NTM as it's a lot more people with it in USA
Thanks Kirsten xx
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