Numb Chin Syndrome

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So I have a small spot on the tip of my chin that is numb, like feeling like how it would feel if a dentist gave you anesthesia.  Just numb.  I thought maybe a shaved to close and cut it making it numb.  Then after taking it for maybe a month or so, I decided to see what could be done about it.  I instead found out about Numb Chin Syndrome.  Everything I read is this is fatal within months due to cancer.  Although I have read it can also be cause by diabetes neuropathy (I'm a type 1 diabetic for about 35 years now, so I'm praying to god that's what causing it, although I don't really have much other neuropathy in my body, so that kinda seems like a stretch), and I've also read anxiety can cause it (And of course I've had anxiety most of my life).  Anyways, to the point, suddenly I'm starting to get TMJ symptoms, earaches when sleeping, dull headaches that last a few seconds and then go away... Should I go to the doctor and see about getting an MRI scan, knowing if it comes back positive for cancer of any kind, I'm probably going to die soon and have most of my remaining time spent in a hospital instead of out in the world living, as well as leaving behind my wife (who does think this all in my head) and 10 & 8 year old kids, which the thought of is pushing me towards depression.  I'm at a complete loss for what to do here and scared and feel so lonely.  Thank you in advance for anyone who has any advice... 

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  • Posted

    not sure if i am doing this reply thing correctly but... here i am, seeking advice and comfort. 4 days ago (tuesday) i started feeling this weird tingly numb feeling under my chin. it then radiated up to my entire chin and bottom lip. its like when the dental anasthetic is wearing off... and I suffer from terrivle health anxiety since giving birth 1.5 years ago. so naturally i googled and of course NCS came up. I have now been struggling with anxiety all week. its affecting me daily. i am trying to figure out what is causing this... funny enough on the second day of feeling this i actually had a Neck CT for some lymph nodes that hadnt gone down. i saw my ENT the next day for this chin thing and she said she felt nothing and that my CT was clear other than a 4mm fatty mass on the left side (which i can feel since Nov) and that its most likely just a lipoma.

    i have had 2 brain MRIS and a spinal one in the last 3 months due to other issues (leg issues/hormone issues) and those were clear... but i had those BEFORE this all started.

    Ive also had tons of bloodwork because i have convinced myself of many diseases before this. including thyroid and lupus and other autoimmune issues. even all kinds of allergies and all have come back clear other than Vitamin D difficiency. Part of me just thinks its anxiety since it all started around the time i had to get a CT. or it has to do with new meds i started last week for anxiety/depression.. but no where can i find this side effect affecting other people with these meds..

    the only other thing i can think of is on Monday night my toddler bit my face really hard right under my bottom lip on the left side... he held it for a while too. it left a bruise and coincidentally the next day this started... so is it just an irritated nerve?

    im losing my mind over this. sometimes the tingling spreads up my entire left cheek ordown my neck. Since everything is clear my ENT is advicing me to go to the dentist. i had a filling 2 weeks ago that actually had my nerve pulp exposed which almost required root canal... not sure if that has any correlation or the fact that i have TMJ..

    even with all of this.. im terrified ofthe worst. this thread has brought me some hope. so thanj you

    • Posted

      Hi Mel! I guess you can find relief in the fact that your MRI and CT came back clear. That this isn't something sinister. I've spoken to a lot of people who experience numb chin and panicked on what they saw on google. A lot of them have tooth issues and TMJ. I actually have both. (I have an untreated wisdom tooth that needs to be removed and is on the same side of the numb chin.) I also clench my jaw a lot due to anxiety.

      I also learned that NCS is much more common from people who has experienced cancer before.

      There's a number of benign reason why we are experiencing this but I guess the authors of those NCS articles saw an opportunity to drive up clicks from us with anxiety.

  • Posted

    Bit annoyed and need a place to vent...

    Previously posted that I developed sudden left cheek tingling/numbness about four weeks ago and then additionally, a numb right corner lip/chin three weeks ago. In that time, I've been to the ER and they only had blood work done (mostly normal - slightly elevated WBC), followed-up with my PCP who believes it's related to a combo of stress/anxiety and perhaps TMJ, and even my dentist who just recommended a nightguard and didn't see any need for root canals or infections.

    When I saw my PCP a week ago, he told me to follow-up in a week if my symptoms had not improved. While the tingling on the left side of my face is now intermittent and my chin doesn't feel as numb, I cannot shake this numb feeling in the bottom right corner of my lip. As mentioned before, not full sensation loss, but certainly reduced to the touch. It's no bigger than the end of my pointer finger, but it's driving me mad! My PCP is not ordering any further tests and only advised to wait to see Neurology in 5 weeks or go to the ER (again) to see if I can get a quicker neurology consultation that way (good ol' USA).

    I truly wish I could just get a scan done or something to put my mind at ease. The thought of waiting till my neuro appointment, then more waiting after that is very frustrating.

    • Posted

      Hey David! Just popping by back here to see if you've found answers. One person on another thread recommended me to just ignore it and see if it goes away. It did for 2 weeks. I haven't experienced any numbness in a while but last night I accidentally hit my lower front gum on the right side with a toothbrush and now the numbness is back. Once again concentrated on my lower right lip. I feel like my lip feels droopy but I look in the mirror and it's fine. I'm getting tired of the stress this is causing me.

    • Posted

      Hey there!

      Still no answers I'm afraid. My job has really slowed down the past couple weeks and I've had some good family time as well that kept my mind largely off this issue. I will say that during this time, while it never completely went away, I will say I felt like I gained a lot of feeling back. Naturally, work is picking back up again and so is my stress, so therefore, the numbness is more apparent too. Starting to feel like this is all in my head and/or a stress response - just wish the alternatives weren't so sinister (thanks Dr. Google!)

      While my doctor continued to suggest I hold out for my neurology appointment in a few weeks, I pressed them to get a brain MRI ordered before then, so I have that this Sunday. Honestly not too worried about that (had my neck done years ago), but waiting for the results will certainly be a nail biter for me.

      I think you should take comfort in the fact that your symptoms come and go and especially with them coming on only when you're hyper-aware of them. At this point, all I can do is try to ignore it and I feel so much better all around. Easier said than done, but the way I look at it, I should only worry about this when my doctor and specialists give me a reason to worry - so far, that hasn't been the case at all.

  • Posted

    Hello everyone, not sure if anyone is still here but I am so glad to find this forum. I found the dime sized numb spot on my chin yesterday as I passed my hand through my chin. Maybe I had it before but had not notice it because it feels normal if I do not touch it. I would not say it is a tingling feeling is more like numb on that specific area, like it would be after they use anesthesia for a dental procedure. Of course I googled it and immediately freaked out and now I'm in this dark place thinking I'm going to leave my two year old motherless (I suffer from anxiety and it was been worse lately). I went to sleep last night thinking it would be gone this morning but it is still there.

  • Edited

    Hey guys! I don't know where else to vent. My anxiety has been at an all time high because my numbness has been terrible this past few days. I've been very depressed and I could not focus on my work. The tingling/numbness has gone up to my right cheek. And then it would go back to the chin and then I'd be scared of the c word again. I'm super exhausted with overthinking. I'm trying to ignore it but my anxiety won't let me.

    Also would like to add that my facial nerve at the mandible sometimes hurt and is sometimes swollen. I don't know if that has anything to do with it. If anyone here with TMD has experience with it? I don't know what to do. I don't want to pay out of pocket for an MRI I could barely afford. I feel like crying. I feel like this is the worst flare of numbness I've had. I feel like all my nerves are fcked up. It just feels like I cannot get used to every flare up and I panic all the time.

  • Posted

    i have this too! its freaking me out loads! mine started a couple months ago i would squeeze/pinch my chin as hard as i could and it wouldbt hurt till after a few seconds ive googled it and everywhere says its aggressive cancer and that paitients die within months im so scared!

  • Edited

    Hi all,

    I just wanted to extend a HUGE thanks to you all for this thread. Like pretty much everyone else here, I made the mistake of Googling 'Numb chin' and then immediately thought that my life was over.

    I went to a local doctor (who was the only one who had an available appointment), who dismissed me as "just anxious".

    In all likelihood he was probably right and it's probably nothing to be concerned about (so glad everyone here seems to be doing relatively ok), but I have made an appointment with my regular GP for later in the week, so that I can at least get a fair hearing.

    Thanks so much for the relief you have all provided, and I hope you are all safe and well.

  • Posted

    Hey guys! Having an all too familiar moment here. I swear I’m never gonna get rid of this stupid lip and chin thing! This weekend it’s been on both sides of my bottom lip and the whole right side of my face up to my cheek. It’s even started at the base of my tongue and the bottom and top gums on my right side. It’s even been on the very tip of my nose the last couple of days on and off. The feeling of pins and needles and the feeling of something crawling on me. It’s so weird and terrifies me every time it happens, especially in my lip or chin. My bottom right side of my lip also feels like it has less feeling than the left side. It could be anxiety but I don’t really think so. Logic tells me that it’s not cancer but it’s always in the back of my mind making me relive the first time I read about you know what! I can’t even bring myself to type it out because it strikes fear in me like nothing else. I do have a swollen gum on the bottom right side but it’s not bothering me other than being a tiny bit sore. Just wanted to check in on everyone and let you guys know that every time anything happens with the whole chin thing I think about all of us and how miserable it’s made us and it makes me sad and gives me hope that it’s nothing serious. I’m going on 3 years now so I figure if it was it probably would have already taken me out. Anyways, I hope you all are doing well and ready for the upcoming holidays.

  • Posted

    So glad i found this! This numbness has been driving me insane! Started in Feb after a surgery, was on and off and no big deal. Had numbness on the entire left side of my body after Covid shot 2. Lasted 2 days, still continued on my face on and off. Then came October. I had a really bad migraine for 5 days and the numbness in my face hasn't left since! It has moved into my chin as well. I had a head CT that came back clear except for some spots that they aren't sure if they are from chronic migraine or stroke. I was supposed to have an MRI on my brain today that is being delayed because their system was down all day. My anxiety is through the roof waiting to find out what is happening! I've been miserable with waiting. I'm so happy to see that so many others are in my boat and that it can not be a death sentence!!

  • Posted

    finally, I have found a thread. Sometimes it feels like a small portion of my right lip and sometimes chin have something on it. Like blood is flowing through it. It's terrifying to see what's on Google. It doesn't feel numb but it just feels weird. Good thing is that I do have a scar there from an injury a decade ago (dog bit my face). There's no scar marks on my chin though, just by my lip. Also, I get small "tingle feelings" in other parts of my body so.... points away from cancer I guess? Gosh I'd much rather have MS. It's so terrifying though.

  • Posted

    Hello Nate and everyone else on this thread, wanted to check in and see how everyone was doing? I read all 13 pages of this thread and let me tell you what a temporary sigh of relief it is that I found this read... and I say temporary because my health anxiety is through the roof right now! I've been a hypochondriac all my life and my family & friends do understand but no one can relate and it feels so lonely to go through these episodes without someone that can actually personally relate themselves! Like everyone else in here, I woke up today with a tingly sensation in my lower left chin area- it has been on and off for the entire day it seems and I keep touching it aggressively to see if its ACTUALLY tingling/numb or its all in my brain. Like someone else mentioned, it feels like a temporary rush of blood in the spot that im feeling this sensation but also both my cheeks have been tingly as well and NOT just my chin. In addition to all of that, my mouth/jaw feels a bit sore but that could be probably because ive been moving it around, opening my mouth wide and closing it etc. I can remember this chin thing happen to me one time not sure how long ago but I TOTALLY ignored it, and ive been having overall face tingling (mostly cheek area) for my entire life on and off ever since i can remember so im not as concerned with the cheek symptoms as i am with my chin symptoms because OF COURSE i just had to stumble across Numbing Chin Syndrome.... shocking I know right? THE ONLY saving grace for my crippling anxiety is that I pinched a nerve really badly in my upper trap/neck area yesterday at the gym while doing a bench press so im trying to convince myself that this is the cause but im getting conflicting on all the different articles I read on whether this can actually cause the chin tingling.... the pain in my neck was EXCRUCIATING when i was asleep and its gotten a lot better after taking some pain meds. I was doing fine with telling myself that was the reason until i remembered that i also had an inflamed/swollen salivary gland underneath my tongue that my dentist didnt seem too concerned with when they looked at it last week, especially since there was no pain with it! The swelling subsided a few days later but its eating at me that this may have something to do with it.... otherwise I am relatively healthy for a guy in his early 20's and i make sure of that with how many times i visit the doctor.... My PCP did blood testing for my preliminary visit with him back at the end of June and everyone came out perfect and he also examined my neck for Thyroid issues I guess? And didnt raise any concern.

    I plan on going to my PCP and dentist this coming week again (its the weekend so they arent open to call which absolutely sucks for me right now) but im wondering how everyone else is doing and their latest statuses if anyone is still active on this thread!!! I could certainly use some reassurance as this is all so knew to me.

    • Posted

      Hi John,

      I don’t know about everybody else but I’m doing fine here. I would definitely consider going to your PCP or dentist to see what they tell you. I would definitely trust that over Dr. google any day. I hope you find the peace from your anxiety as soon as possible. My condition at this point has pretty much cleared up completely. So unless i make a new post or my wife does for me, assume I'm doing fine. Love you all!

    • Posted

      Thanks for the swift response, Nate! Wasn't sure if anyone was still active on here. Glad to hear your symptoms subsided..... I haven't felt any tingling for about 24 hours now since I managed to calm myself down. My lower jaw is sore though without the sensation I described yesterday so I definitely will go see the Dr's for a diagnosis. Been noticing my teeth clench alot recently, especially more now with the pinched nerve pain so I can't rule that out either. But you're right, self diagnosis is the worst thing to do right now, especially on a weekend! I appreciate the update on your situation and hope everybody else is also still doing well that posted in here previously!

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