Numbness

i can actually feel my legs starting to go numb when I start drifting off and after a while my arms too and I wake up with all limbs totally numb, my legs just down to the knees and my arms from the fingers to just above my elbows. Just wondered if anyone els does or whether this could be from my injury when I fell down a hole and damaged my spine and pelvis. I get siatica so maybe its nerve damage x

queer, bloody frustrating. it seems so unfair that it seems to strike active busy people ,dosent seem to strike coach potatoes.

i do my shopping on line. because iv got better things to use my strenght on. i no this isent always possiable but iv found it a boon. that ebay.

i find it difficult to control my body temp i am either to cold or to hot .

i get that pins and needles in my thighs its horrid and i used to get arter cara not sure how to spell it ,but its like red blotchy itchey rash that covers the body , out the blue last a few days then goes away touch wood havnt had it for bad for a year or so.

i gett trouble swallowing from time to time which is also part of fibro thats a bit scarey.

 

mine only used to be hands and arms but is now legs too, especially my right leg. I start off on ne side till my hip gets too bad, go to the other side till the other hip hurts too much then end up on my back till the numbness wakes me up! Wouldnt it be great if you just didnt have to sleep?!  I wonder whether a wedge to lift feet higher and maybe one for neck and shoulders  would help?

i am the same Tina, very hot in fact sweating profusely to be more precise! Then ten mins later shivering, it is very odd indeed. With you having that rash, have you been tested for lupus? A colleague of mine years ago was always convinced mne was lupus but I never had the rash. 

It is scary when you cant swallow properly, especially when it happens dueing the night when you are sleeping

no the rash is is part of the fibro it can be caused by other things conected to autoimune conditions.

i have blood tests yearly to make sure that the fibro isent hiding any other illness like MS.  because as you know fibro has so many symptoms, dizziness,nausea, ibs,numbness,digestion problems, brain fog, well u know. all that. its so frustrating.

fingers crossed i seem to have the ibs,and dizziness,rashes,undercontrol.

the pain is more managble since using the oil i found. so i sleep better

and get less brain fog.

but the cold esp drafts can be so painful tightens my fingers

and gets my neck,and shoulders,

but this heat makes me feel swollen althou i have no outward signs

of swelling . honesty it drives me mad.oh well fingers crossed i stay

on the improvement track .

yes, fingers crossed! I dont normally have any rashes but did have a particularly bad one last week across my back and it felt like someone was holding a blow torch on it at times. Its clearing up now but still gets really itchy.  I may have taken too mich oramorph though, so that could have been the cause. Do your fingers lock when you grip something tight? Mypine do in my left hand when I hold a heavy pan and I just cant get then to straighten without a lot of pain

i struggle to hold any weight my wrists are very weak, i use two hands always, if i hold something in my hand then put my hand down i will drop what ever i am holding, my fingers lock i push my fingers back till they crack it hurts but it loosens them up.

my ankles are worse they lock up when i am walking and it hurts like hell not the first time i have had to limp home whincing all the way ,

i know what you mean about having to hold everything with two hands and dropping things! I struggle with my morning coffee. Luckily my ankles are not that bad at the mo though. They did swell terribly last week but I have been resting for the last 4 days so thats gone down now.you are doing really well getting on with things, I know its the best thing to do and when I am up to it I do as much as I can too. I feel really bad, lazy at the moment cos I havent cooked for days and the whole house is such a mess. I keep closing my eyes to it. I know if I could just get it done i would feel so much better, but cant stand up without my stick at the mo. think the heat is making things worse. It always helped in the past but this year is very different. I really want to go to the national trust gardens too but since the membership cards came through things have gone downwards very fast so not been to any yet. I missed the laburnum at Bodnant, my favourite garden, absolutely gorgeous! Never mind though its always lovely there so still time x

i think this year is worse. because its been hot, humid so a bit like sitting in a green house , iv felt so drained ,even though due to my oil rubs iv had less pain and more sleep ,iv still felt tired ,

if we had the summer of 76 we would feel fine because it was hot but dry

.i know people who live in hot dry countries get less athritus and simuliar problems.

and people who take holidays in those countries also get less pain when they are there.

i had a fried egg a couple of days ago ,and suffering from awful constapation ,night mare i love eggs but since fibro i sufer bad.

do you have trouble with certain foods that u didnt before,

can you remember when your fibro started , i think i might put that out as a deiscussion it would be interesting to what comes back

i know what you mean i wasnt able to make tea tonight was just absolutly knackered plus my stomach was hurting making me feel nauseas

. i love living musems but its reall hard work getting round them and knowning i am going to knackered for days after puts me of,

and i hate using my stick because it makes me feel old, but with out its to risky last year when i fell i broke my nose and a bone in my hand.vanity cost me alot .

funny enough my nose wasnt to painful at the time but i had mild concunsion so felt quite dizzy ,and my hand reallyhurt, what really made me angry was my sight got worse although no damage found , and wearing glasses is now painful. 

  i really miss my heels i loved high heels not massive just about 3 / 4inches, but no way, its mules from pavers for summer and boots for winter , you can get some nice flattish boots , with studs and buckles but shoes are impossable.

have you asked your doctor about cognative therapy ,its supposed to be availble on the nhs and has some good results, its a talking therepy but not about the past it deals with the hear and now.

have u noticed when u get other illnesses like flu , that your fibro symptoms arent so bad , . any way dont worry about your house work

you dont want a accident trying to do something that really not that important, i know when u have standereds like us its hard,

all my kitchen cupboards need cleaning out but at the moment it seems like a manmouth task ,so it will have to wait.

 

i have always wondered whether bread makes m worse so going to try eliminating that. I know what you mean aout using your stick, I hate it, bu its surprising how many people notice you and offer help! I think i preferred being invisible! 

I am not sure whether it is a symptom of fibro or whether its just one of those things. It is dreadul when you feel like your legs are going to burst! Mine were like that last week, had to elevate them and stay off them for a few days. I feel like a zombie at times too. I would love to have access to gas and air it was the only thing that took my pain away!