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Numbness

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julie69228
julie69228

ive got numbness in the lower half of my body I've been like this now for 18 months I've had several Mri scans which show degenerative disc bulges I've also had a lumbar puncture and nerve conductive tests all of which can't explain my symptoms all the specialists have come up with is that I must have had a stroke while I was asleep I went to bed ok and woke up feeling like I had slept on my leg and it had been like dead throughout the day I started to go numb in the legs and I couldn't walk so I went to hospital and got admitted I was there for a week of which they did tests and sent me home as an outpatient I still don't reallyknow what I've got or if I'm ever goin to get any better or in fact any worse would like to know if there is anyone else out there with similar problems any advice or anything that can help me will be very much appreciated..... Rhankyou

 

0 likes, 11 replies

11 Replies

  • deb3313
    deb3313 julie69228

    Posted

    Have they looked at the degenerative disc bulges? Are they doing anything about them? Any chance they could be causing your symptoms? Certainly doesnt sound like a stroke besides an MRI brain will pick up a stroke even one in the past ! Sounds like ( as usual ) the doc's dont have a clue. Im sure half the time they think us patients just make crap up just to past the time of day ! They dont really listen to us. and they dont Investigate fully (grrrr rant over, i hate doctor at the moment ). Anyway... if the doctors honestly think you may have had a stroke, ask for a brain MRI to see if that is so smile Good luck
  • julie69228
    julie69228

    Posted

    I have had a brain scan and they said it was ok... They havnt gave me a diagnosis so the problem I've got at the moment with work is now I'm having to see occupational health and they reckon without a diagnosis I should be able to return to work............. Anyway the problem I have is that now winter is coming my legs and back feel worse. Is there anybody out there who has experienced anything like this, and if so did things turn out ok or?? 
  • jan09788
    jan09788 julie69228

    Posted

    I have numbness in my legs and went to see the doctor, he said it was all to do with my back - neurological no offer of a scan nothing. Happens to ladies of a certain age he said. I'm only 61! NHS cut backs no doubt. What I do is use light weights to stretch my back and walk a lot, don't know if you can do that but it might be worth a try. I'm autoimmune and different parts of my body do come under attack maybe you should ask for an auto antibody blood test - and across the board blood tests which might throw something up. Good luck.
    • julie69228
      julie69228 jan09788

      Posted

      Well this happened when I was 49 and was asked by the doctor if I'd been ill or had a trauma but I had neither of them just woke up like it. I will defo talk to my doctor about having a blood test but I've had blood tests done but not sure if it's wot u suggested. I feel as tho they have given up on me and seriously thinking of going private.
  • buddha
    buddha julie69228

    Posted

    During your blood tests did they check levels of B12?  Any diabetes issue?  I'm sure they checked all of that, but just wanted to check.  I'm about 7 weeks in with numbness. All on my left side.  MRI showed up.  They are sending me for nerve testing now.  I don't even know what that will show.  I may push them to search diabetes more. 
    • julie69228
      julie69228 buddha

      Posted

      Hello, yes they checked all of that they even thought at one stage that it might have been Ms, they just don't no what it is and why it's happened. It's horrible but the way I see it is that I'm able to get about but slower than normal there are people worse of than myself. I have a good partner that looks after me I'm unable to go to work because I have issues other than numbness, it affects my toilet issues quite bad as well and my stomach is so swollen at times it looks like I'm pregnant lol . Cold weather seems to make things worse as well so not looking forward to that coming. Just have to get on with things and hope it doesn't get any worse. Hope things get better for you doctors just don't seem to care. 
    • spursangie
      spursangie julie69228

      Posted

      Hi. I feel so sorry for you having to go through this, it must be hell.  Like you I am really unwell but, after nearly seven years, they have discovered that I have low intercranial pressure and possibly a CSF leak.  It took my own research and thousands of pounds on private health to find the one doctor who put all my symptoms together and suggested a different type of test, which found the problem.

      I have no medical history other than being a frustrated patient and having to do my own research, but something in your last post jumped out at me, and that was the swollen stomach.  It might sound crazy, but have you seen a gynaecologist?  I wonder if you have something wrong with your ovaries, which can cause bloating and neurological symptoms which include leg pain and, I believe, numbness. It would be easily picked up by a transvaginal ultrasound.  Just a thought, and I do hope you are soon feeling much better.

    • buddha
      buddha julie69228

      Posted

      Thank you for the reply!  I hope you feel better soon also!  hopefully you can keep us posted on your progress.  Take care. 
  • spursangie
    spursangie julie69228

    Posted

    Another thought, as I feel so much empathy for you, the doctors just give up.  My problems also started when I was 49, and I think the doctors think that we start get psychosomatic symptoms because of our hormones.

    The other suggestion, if you are thinking of going private, is to see a general physician/general consultant.  They will look at the whole problem rather tham, as many specialists do, only being interested in their own area of expertise, and usually consider things that other doctors would not.  I don't know where you live (anywhere near London?)  There is a place called the Private Physicians Clinic in Devonshire Street, just off Harley Street, set up by a fantastic doctor called Dr Paul Glynne, who is a general consultant.  Quite a few of the doctors there work at University College London Hospital, which is an excellent hospital.  Dr Glynne was so lovely that when I went to him with my own problems, he was so convinced that it was a neurological problem and did not think he would be able to help me (although he did order a couple of blood tests) and he refused to take payment for the appointment.

    I only mentioned the ovarian problem because I had a large ovarian cyst removed some years ago, but had no pain, only problems with walking and standing.  Some years later I had a ruptured ovarian cyst on the same side (although this was painful.)  When I had the cyst which needed to be removed, I had a lot of bloating of my abdomen and some bowel problems, which is why I wondered if this could be what is causing your problems.  WIll not bother you any more.  As I said, I have no medical background other than several bad experiences of doctors who refuse to listen to their patients (which happened to both me and my father.)

  • julie69228
    julie69228

    Posted

    Thankyou every one for your comments I was thinking of goin to another hospital and just seeing if anyone there can actually diagnose me, another new doctor to look at me..... U never know.but goin private a lot of money but worth it in the end if they can help 
  • spursangie
    spursangie julie69228

    Posted

    The very best of luck when you go to the hospital tomorrow, and I hope somebody can help.  It is awful to have to put your life on hold and to suffer because some doctors just aren't interested enough to persevere. Never give up. There will be an answer to your problems, it just takes someone to think, as they say, outside the box.  Fingers crossed that you soon get your life back x
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