Posted , 7 users are following.
Hi I've been diagnose with CFS and things are up and down . Just wondering from those who have cfs does anyone else have numbness tingling ? I have it constantly in by outer left leg. Left arm and led hand and sometimes in my dad and tongue . Again I the left side . Would be interested to hear from others as generally not mentioned with cfs. I hsve had brain and a mri both showed nothing .
0 likes, 14 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
Guest jan96753
Edited
Hi, yes I get numbness, pins and needles but my neurologist said it's caused by small Fibre Neuropathy not the CFS. I had tests done to rule out large fibre neuropathy. Might be worth getting it checked out.
jan96753 Guest
Posted
That's something to think about . Thankyou
jackie00198 Guest
Edited
Just want to jump in here. Hope that's ok. My ME/CFS specialist said that the pins and needles is indeed caused by small cell neuropathy. But he also says the small cell neuropathy is caused by the ME/CFS.
tracy47348 jan96753
Posted
jan96753 tracy47348
Posted
Thankyou i was becoming a little concerned that I had not read anywhere about only one side being affected. I've heard of it bilaterally and random but never the same side . Thanks for sharing . Best wishes !
jackie00198 jan96753
Posted
jan96753 jackie00198
Posted
elaine62759 jan96753
Edited
I get numbness too and always in the same places - left side of my face, left arm and bottom of my right leg. I was told it was probably due to nerve damage caused by the Glandular Fever virus I had when I was first ill. It always appears when I've overdone it and goes away when I rest. It used to get me quite stressed but I now see it as my body's way of telling my I've done too much and that I need to rest more!
rhonda59974 elaine62759
Posted
How are you now Elaine?
I have pins and needles in arms and legs/ sometimes face, and was diagnosed with M.E 8 years ago.
Did you have an MRI scan for MS?
elaine62759 rhonda59974
Edited
Hi Ronda
I still get the occasional numbness in face, arm and leg and have it as I am writing this! It seems to come on when I've done too much or had prolonged stress which causes the muscles to tense up. I wasn't tested for MS but the doctors ruled it out by my symptoms. I know a couple of people with MS too and although a lot of the symptoms are similar to CFS others are not. I had improved slightly before the coronavirus nightmare started but have now relapsed. I think the constant stress of it all plus having to change daily routine and extra cleaning/wiping things has taken a lot out of me. I'm currently trying to find a new normal that works for me.
Hope you are managing in these strange times. Stay safe!
Elaine
rhonda59974 elaine62759
Posted
Thankyou for this Elaine that's really helpful.
I'm finding the lockdown exhausting too.
I love having all the family at home but it does involve more work ( meals etc, cleaning..)
That's reassuring regarding M.S
It does seem we share many symptoms but I did hear there are differences too.
I hope you get to take it easy soon.
I've eased up on the disinfectant..hoping the risk is minimal if I keep washing my hands!
jan96753
Edited
Yes it's the same for me eorae when im really exhausted .
rhonda59974 jan96753
Posted
Thankyou for this Jan.
It worries me when a new symptom appears - it seems that when one settles down another starts up!🙈
janet71271 jan96753
Posted