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I have been suffering from numbness (more down my left side but can be in my right), myoclonic jerks and twitches for about 5 months. At first I thought it might be due to benzodiazapam withdrawl as I had been on a low dose but I managed to come off them. However nearly 2 months later the symptoms were worse. I am now back on 2mgs of diazapam at night as it is the only drug that gives me some respite. I will tapour off them slowly if I get an all clear from the MRI.
I am due an MRI scan next week and a neurology appointment on 4th February. What I have found really difficult is the long wait for the MRI and neurology appointment. It seems if you are not classified as urgent you have to wait on the never never for the NHS. Anyone else out there suffering with the uncertainty of a diagnosis, unpleasent symptoms and long waits. I have ended up in A&E 4 times, numerous visits to the GP and out of hours service only to be told it's all anxiety. Anxiety may play a aprt but I don't beleive it is the whole story.
Anyway would love to talk to someone.
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