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Nutribullet

Posted , 11 users are following.

tricia11872
tricia11872

I have been on Pred for sixteen months, started at 15 and now down to 5/6 thanks to Eileen's method of reducing. I put on weight especially over Xmas and felt miserable. I then bought a Nutribullit and now make shakes and smoothies. I have given up sweets, cakes, bread and biscuits and now eat more apples. I try and go to Zumba twice a week and aim to have a long walk at least once a week. Whether I shall be able to reduce Pred to 0 is debatable but I have started to feel more positive. This has all helped me and I hope will help others.

5 likes, 25 replies

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  • tricia11872
    tricia11872

    Posted

    It's a liquidiser but does a better job! If you google it..it will explain better than I can!
  • EileenH
    EileenH tricia11872

    Posted

    Not wishing to put a downer on the Nutribullet - eating the fruit and veg whole is MUCH better for you. Processing fruit (especially) and veg removes the primary useful part of the fibre - even the versions of food processor that leave the fibre in rather than just extracting the juice break down the cell walls. This releases the sugars straight into the blood stream and you get an immediate sugar rush. It is very easy to swallow more than the daily recommended amount of sugar from one single glass of smoothie. 
    • constance.de
      constance.de EileenH

      Posted

      Problem is, I just don't like fruit, or salads!!  Perhaps I wouldn't notice if I DRANK them.
    • HOTpicks99
      HOTpicks99 constance.de

      Posted

      The only fruit i eat are bananas i should eat more fruit but for some reason im not a lover of themsad
    • EileenH
      EileenH HOTpicks99

      Posted

      I eat very little fruit, it's all veg I eat most of the time. In fact, fruit should be restricted to a max of 1 serving of your 5 a day so it doesn't really matter if you don't like them.

      A serving of fruit is about what you can hold in the palm of your hand: so the average apple, banana or orange sold in supermarkets these days is almost always 2 servings! 

      If you don't like veg - whether because of texture or taste - and easy way to hide them is to liquidise or (better) chop them very finely and add them to bolognaise sauce, to make the gravy in gulasch/stew or incorporated in other dishes. That's how my daughter smuggled veg into her children when they were little. And soup.

      Think about why you don't like veg? Try different cooking methods: brussels sprouts, cauliflower or broccoli may be hard work when boiled to death. They taste totally different as roasted veg or done on the grill! I eat them raw (yes, brussels too) but I realise that is not for most people.

    • constance.de
      constance.de EileenH

      Posted

      Luckily I adore veg.  Don't eat many carbs, except the odd gateau.  Don't like bread,  or potatoes (unless they are mashed or "creamed").
    • EileenH
      EileenH constance.de

      Posted

      There you are - win win! You don't NEED fruit or salad, just loads of different coloured veggies. If there is nothing else on the menu here I can eat there is almost always grilled veg as a side dish so I ask for either a large portion or if they would put some cheese on top - YUM!

      I think bread and potatoes are rather overated too - though a freshly baked rye bread crust is a bit tempting...

    • constance.de
      constance.de EileenH

      Posted

      Go on! Spoil yourself!  They do make good bread over here, I give you that. 
    • EileenH
      EileenH constance.de

      Posted

      The rye here isn't quite as good, always made in a tin and it doesn't taste the same as a Laib - I've found a very good baker in Innsbruck though. The best is from an Edeka near Garmisch-Partenkirchen - always buy one when passing.

      What they sell in the UK isn't bread...

    • erika59785
      erika59785 EileenH

      Posted

      These German/Austrian breads ----especially rye ---- are so good.  There is German breakfast place here in Potland where my family and I go for breakfast/brunch on weekends.
  • pat38625
    pat38625 tricia11872

    Posted

    Hi Tricia, I have a Ninja (it takes care of the fibre and pips so it means you get all the nutrients).  I haven't used it since before Christmas.  I don't eat biscuits, sweets or cakes.  I used to go to Zumba but since the onset of PMR there is very little I can do, as it tires me out.  

    I don't even go for a walk as it also tires me out, but I am sure it won't always be like this.

  • muirkelsi
    muirkelsi tricia11872

    Posted

    I  have been on prednisolone for fifteen months, after having a fall when I broke my shoulder. I started on 15mg, and very slowly have brought it down every four weeks to 10mg which was perfect. IAs soon as I dropped to 8mg, I started getting strong pain in my arms and wrists. The reduction regime given to me by my Rheumatologist was to 8,7,6 for 4 weeks each, then 5,4,3,2 1 for 8 weeks each. I dread to think what I would be like if I drop from the 8mg that I am at now. I would be so grateful to have your input.

    Regards,

    Grace 

    • EileenH
      EileenH muirkelsi

      Posted

      I can only repeat: contrary to what some doctors appear to think, when reducing you are NOT reducing relentlessly to zero. You are reducing to the lowest dose that manages your symptoms UNTIL THE UNDERLYING AUTOIMMUNE DISORDER WHICH IS THE CAUSE OF THE SYMPTOMS WE CALL PMR HAS GONE INTO REMISSION.

      A doctor would not demand that a patient with RA who is well managed on a DMARD reduce that DMARD dose to zero. They know the RA symptoms would come back. They would not demand a patient with high BP who is well managed on antihypertensives reduce the dose to zero, their BP would probably go back to where it was before. It is no different with PMR: it is a chronic disease which - unlike the other two problems I have mentioned - will very likely go into remission at some point. It may be in 1 year (unusual), 2 years (it happens) or 4 or more years (much more likely).

      You should probably be at about 9mg, if you were under the Bristol rheumatology department, after 15 months you would just be considering a reduction from 10 to 9mg. If your current rheumy cannot accept you need to pause your reduction at the very least, go back up a bit at best, then present the situation to your GP. If they won't play the game you need another doctor. 

    • muirkelsi
      muirkelsi EileenH

      Posted

      Good afternoon Eileen,

      As my arms and wrists are really painful, I have decided to go up to 10mg, and hopefully the pain will ease off.

      I saw a rheumatologist last year, and he gave me the reduction regime, but no follow up consultation. My GP said to come back in a couple of months and let her know how I am getting on. I wonder if it would be ok to go back to a higher dosage, and if the pain goes away,  could I stay on that dosage for a while?

      Thank for helping all of us on the forum. It is greatly appreciated.

      Grace

       

    • barbara75814
      barbara75814 EileenH

      Posted

      Q: how do you know when pmr has "gone into remission?"  Thanks, Barbara
    • EileenH
      EileenH barbara75814

      Posted

      The only way you can tell is by trying to reduce in small steps and slowly and if you get to low doses and then zero with no problems - the PMR has gone! Because you will have been on above 10mg for some considerable time you must go slowly anyway. But that is the main reason you have to keep trying to reduce a bit further and a bit further again if it is successful.

      A few people have said they woke one day - and felt totally different. And then steadily reduced all the way down. 

    • EileenH
      EileenH muirkelsi

      Posted

      Once the pain has gone then maybe a very very slow attempt at reduction - 1/2mg using the dead slow and stop scheme might get you to a lower dose - you can stop at any time if you get any sign of a flare. I had hand and wrist pain until I tried the very slow version - either it was steroid withdrawal or coincidence that the PMR was less active when I tried the slow version.
    • barbara75814
      barbara75814 EileenH

      Posted

      Thanks, Eileen--and yes, I hope I'm one of those people. 
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