Nystagmus Direction and Bilateral Neuritis?

I have posted on a few different threads, and I am getting confused... I just have a couple of questions if anyone knows the answer or can help in any way.

If I have downbeat nystagmus, is that non-rotational, and so is it a symptom that my calcium crystals are in the lateral canals, and that's the reason the Epley manuevers aren't working for me? Possibily I need to be doing the log rolls? 

Is the superior canal of the inner ear the same as the "anterior" canal? 'Can't find an answer on the internet. I'm sure the lateral one is the same as the horizontal one, and there seems to be no other name for the posterior one, so that's fairly straightforward.

There is no otoneurolgist in my area (upstate New York) so that option is out.

I asked my ENT nurse (still haven't seen this 2nd ENT doc yet, but he is known to be a balance specialist) if vestibular neuritis could be in both ears. She said "highly unlikely". So why would anyone get an inflammed vestibular nerve in both ears?

You can have BPPV AND Verstibular-Ocular Reflex    dysfunction? Does anyone know if this is possible, or is it the crystals that can be causing the misfiring of the vestibular nerve? This causes objects to lag behind where they should be, then finally catch up through a series of non-saccodic movements, instead of instantaneous movements as they are supposed to). This makes for an interesting light show when I walk at night.

No professional is giving me any answers, just treatments that don't work (Epleys, VRT). I think I have read more than I ever have during all of my years in college! It's CAUSing anxiety, but isn't caused by anxiety with me, I've been told by my first ENT.

Thank you for any and all help. I'll try and limit my questions to this thread, but will help whoever ask anything else in any other dicussion...

0 likes, 4 replies