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I am beyond depressed and cannot describe my emotions. Since October I have been going through some strange symptoms. It started out as vertigo- difficulty focusing my eyes the room spinning to the right sensation. The symptoms occurred before my menstrual cycle. Then I went to my Primary doc and she Dx me with bppv and sent me to vestibular therapy. The therapist never say nystagmus doing the dix hallpike exam and never truly felt it was bppv. After 2 weeks the symptoms went away and I moved on.
November- got a headcold and felt the eye jerking sensation. Never progressed like initial episode.
(Never felt normal since this all started with my eyes although close to normal for most part)
This current episode started 2 weeks ago to the day. Started with the inability to focus- like I would talk to someone and look at them and felt like my eyes were moving although no one noticed it. I feel like sometimes my pupils are dilating to my pulse too. This all started again before my menstrual cycle was due. I had slight vertigo but I have horizontal nystagmus when I look left and right and it's extremely brief. I did have 2 migraines from my period but I have always had them. Other symptoms I had this time were tinnitis and a feeling of pressure in my ear or below- not anything major but it's different. I also feel as though my head is foggy at times- maybe even heavy? Not sure how to describe it. I have a history of seronegative arthritis that has always caused pain in my sacroiliac joints (spondyloarthropathy)... not sure if it's relevant.
My problem is I went to therapy today and she said there was nothing she could do for me saying it's not my ear. I am going for a second opinion with an ENT next week- saw one last week and he gave me no possibilities. I am 31.. beyond depressed. When you read nystagmus causes it tells you brain tumor or MS.. I'm not expecting anyone to diagnose me on here but please any insight to make me feel less emotional. As of now i am hysterical for 5 days bc I want to know why this is happening and no one can see it and of course it takes weeks to see a specialist. I have nystagmus and ineven recorded it to show the docs.
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