Obstruction

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hi all

i hope there is someone out there that can help!

im a long term CD sufferer and been through the mill with it over the last 20+ years but the last two have been hell.

yesterday really did top it all off, I saw my specialist, I've been suffering fairly bad stomach pain and some throwing up, I've had my gallbladder removed and that sorted it out for a while, well until last Saturday, when the pain became mental, and food was out of the question, after chatting with my specialist he told me he thought that I had an obstruction so they are sending me for a ct scan, and then we can make a plan.

im in so much pain, I'm managing to eat little and often, but I'm sure as you know that's the last thing I want, my weight has dropped again, and I feel bunged up!

i just wondered if anyone had a similar issue and what had happened to you?

any feed back would be great

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  • Posted

    Hi Lynne I suffered an obstruction twice both times I experienced terrible pains mainly around my belly button and radiating outwards. I felt sick too but didn't vomit. The first time it moved itself the second time I was admitted to hospital . The cause of the obstructions was strictures and I was told it would probably happen again. My gastro and I decided planned surgery to remove the part of the bowel with the narrowings was better than another obstruction occurring and emergency surgery. I had part of my bowel removed 5 years ago and have been doing well since. I'm surprised you have been left like this and I would advise you try a more liquid diet to avoid your gut obstructing any more you don't want to find yourself with a perforated bowel. I hope you feel better very soon.
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  • Posted

    Hi Lynne,

    Really sorry to hear about your pain, you don't say when your scan will be? I hope its soon.

    I am waiting for an operation for a stricture which gives me pain, but it has only obstructed once.

    My usual crohns pain which I compare to gravel going through, and flare up pain which is sharp, crampy and windy with rushes of wind or food rumbling through.

    But obstruction pain is something else eh? I nearly collapsed and wanted to lie on the floor and weep, like yourself vomiting for Britain.

    I called 101 who sent paramedic, as they were fearful of a rupture had pain injection and anti sickness injection. Im quite a robust gal, with a high pain threshold, was walking around with appendix rupture prior to crohns so you are not being wimpy!

    Luckily it cleared then same day ...in spectacular fashion enough said?? And later realised caused by too much fibre (fruit in this case) I stupidly had more fruit as trying to lose steroid weight gain...won't be doing that againB-)

    I hope you have something for the pain while they sort you out, and you have someone looking after you. The only advice I can give is low residue diet, lots of fluids. Its worse at night as you're probably so tired and the pain drags you down, but you are not alone, and it will get better, push your doctors, tell them how bad the pain is , don't try to be brave, cry if you want to, twenty years ...blimey you deserve a medal.

    Good luck

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  • Posted

    Hi Guys and thank you both, that's helped a lot, when I saw my specialist I hoped this was just ibs and that it would clear up, as I've got a bit of a thing for going to hospital now a days, but luckily I'd had bloods done and he told me that I looked worse than I had in a while, I've not had the appointment yet but it's been put through as an emergency, and as soon as I've got the appointment my specialist will see me, I've had my fair share of operations which has left me with only two inches of colon.

    im hoping that it really doesn't come to that, hopefully inflixmab will work its magic for me!

    the one thing you both say is about my diet and it's just dawned on me that I've not drunk enough today, so I must try and do something about that, 

    thank you x

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  • Posted

    Blimey, you have been through the mill already, yes fluids fluids....boring but true, I have to careful re caffeine and fizzy drinks too so double boring. Take care, rest up and keep us posted. Night night hope you sleep.;-)
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  • Posted

    Hi Lynne, twenty years that a long time. I know what your going through, I went through a lot I ended up in hospital had a terrible time got operation ilestomy stoma and I have a bag. Hope you get sorted and things go well.
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  • Posted

    Hi well since I replied last time things got better for a while, but now I'm feeling worse than ever, I've lost more weight, I'm pretty sure I'm dehydrated, no energy, can't eat, even liquids are a problem because they just make me feel bloody sick all the time, so I feel a bit like I'm fading slowly away, I took my methatrazate on the weekend and I'm pretty sure that has made things worse, as for my other medications I've not been able to take them either and I know that's a mistake but I'm in a bit of a mess, sorry I'm venting but I'm feeling so god blame lost
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  • Posted

    hi again Lynne,

    Just about to go to bed and saw your post

    So sorry to hear you so desperate, I don't know for sure but when I was on methatrexate I was very very fatigued, tearful and had a few episodes of rage....really not like me, perhaps you should get onto doctor, it doesn't seem to help (presumably you have been on a while) and you are not managing the pain. You need help, don't try to be brave, I think you have struggled long enough. get someone to go with you who knows what you aregoing through!

    Take care and hope you get some sleep.

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    • Posted

      Thank you Sharon, it really was what I needed to hear, so here I am back in hospital which is the best place for now,

      thank you so much for your support 

      Lynne xx

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  • Posted

    Hi Lynne,

    So glad you are getting help, although I appreciate more hospital is not home.

    Hang in there I am sure things will improve, you must be a hell of a tough cookie to have coped this long.

    Keep us posted and good health xxx

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  • Posted

    Hi Lynne,

         I'm so sorry you are feeling so ill! I have had crohn's for 52 years since I was 14 and have had 1 exploratory surrgery to detect crohn's, three resections due to obstructions and the most recent on was in March of 2015. The pain was so severe just above the bellybutton and to the lower right ileum.  I was throwing up my own stool and at that point the ambulance was called. I was taken to the hospital and had an ng tube put in, Ivs, had xrays taken and then finally admitted. My surgeon came in four days later and said I needed surgery the same day. I was in the hospital for seven days. Recently went to my GI and he sent me for ct scan for I had bad pain in the same area as I had the surgery. The test revealed that I had inflammation and a narrowing in the same area.. Was not happy with that news. Don't know why this inflammation returned so quickly and neither does my GI. I know I have adhesians also for they come right after surgery. Right now I am on Pentasa but it doesn't seem to be working for me. My GI wants to put me on a medication called mercaptopurine a 6MP. I don't like any on these medications for the side effects are terrible. We have this terrible illness and the medications we are on are horrible with side effects.

       Crohns' since 1963, medications: pentasa 500mg 2/4xper day, vitamin d3,2000 iu per day, dha 600mg per day, cq 10,100mg per day, bentyl when needed.

     The only thing that keeps me going after all these years is my Faith, With  God All  Things Are Possible. Hope this will help you.

     

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    • Posted

      Hi Rose

      thank you for your reply, it's always good to know your not on your own, I'm still currently in hospital, having steroids into the IV four times a day and I'm on a liquid diet, I'm feeling better than I did, and much more positive about things.

      many thanks again

      lynne x

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  • Posted

    Hi Lynn,

     So glad your feeling better hope you get out of the hospital soon. Thank you for your concern. I am so glad to be on this forum where we can share with others.

        God speed!!

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  • Posted

    Hi Lynne and Rose

    Relieved to hear the hospital have been able to help and you are feeling a bit better. I am happy that you feel more positive too, hopefully home soon.

    Rose, I am sorry to hear that the inflammation has come back so soon after your op, that's so disappointing...I have realised that your post indicates that you have had crohns since 14 !!! You must be very strong !

    I feel very wimpy having read your posts you are both so brave.

    I have my stricture op date 27/10 ( barring cancellations) and currently managing on no meds other that paracetamol when pain gets bad.

    Staying positive and trying not to assume all will be better after but you gotta stay positive.

    Sending get well wishes to you both xx

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    • Posted

      Hi Sharon,

      I'm not brave when this pain is so intense that I cry and try not to let my husband hear me because he just doesn't know what to to. He's a great man always trying to help me but at times I just don't want anyone around at this time.Do you sometimes feel this way? Since I was 14 when I found out I had this I was out of school for one year with a tutor. Horrible for a 14 year old girl.  Now I am so frustrated with this illness. Believe me you are not a whimp this disease can make anyone whine. I would love to chat more with you and anyone else.  

      All my caring goes out to you and everyone else.

       

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