Obstruction

Hi Lynne I suffered an obstruction twice both times I experienced terrible pains mainly around my belly button and radiating outwards. I felt sick too but didn't vomit. The first time it moved itself the second time I was admitted to hospital . The cause of the obstructions was strictures and I was told it would probably happen again. My gastro and I decided planned surgery to remove the part of the bowel with the narrowings was better than another obstruction occurring and emergency surgery. I had part of my bowel removed 5 years ago and have been doing well since. I'm surprised you have been left like this and I would advise you try a more liquid diet to avoid your gut obstructing any more you don't want to find yourself with a perforated bowel. I hope you feel better very soon.

Hi Lynne,

Really sorry to hear about your pain, you don't say when your scan will be? I hope its soon.

I am waiting for an operation for a stricture which gives me pain, but it has only obstructed once.

My usual crohns pain which I compare to gravel going through, and flare up pain which is sharp, crampy and windy with rushes of wind or food rumbling through.

But obstruction pain is something else eh? I nearly collapsed and wanted to lie on the floor and weep, like yourself vomiting for Britain.

I called 101 who sent paramedic, as they were fearful of a rupture had pain injection and anti sickness injection. Im quite a robust gal, with a high pain threshold, was walking around with appendix rupture prior to crohns so you are not being wimpy!

Luckily it cleared then same day ...in spectacular fashion enough said?? And later realised caused by too much fibre (fruit in this case) I stupidly had more fruit as trying to lose steroid weight gain...won't be doing that againB-)

I hope you have something for the pain while they sort you out, and you have someone looking after you. The only advice I can give is low residue diet, lots of fluids. Its worse at night as you're probably so tired and the pain drags you down, but you are not alone, and it will get better, push your doctors, tell them how bad the pain is , don't try to be brave, cry if you want to, twenty years ...blimey you deserve a medal.

Good luck

Hi Guys and thank you both, that's helped a lot, when I saw my specialist I hoped this was just ibs and that it would clear up, as I've got a bit of a thing for going to hospital now a days, but luckily I'd had bloods done and he told me that I looked worse than I had in a while, I've not had the appointment yet but it's been put through as an emergency, and as soon as I've got the appointment my specialist will see me, I've had my fair share of operations which has left me with only two inches of colon.

im hoping that it really doesn't come to that, hopefully inflixmab will work its magic for me!

the one thing you both say is about my diet and it's just dawned on me that I've not drunk enough today, so I must try and do something about that, 

thank you x

Blimey, you have been through the mill already, yes fluids fluids....boring but true, I have to careful re caffeine and fizzy drinks too so double boring. Take care, rest up and keep us posted. Night night hope you sleep.;-)

Hi Lynne, twenty years that a long time. I know what your going through, I went through a lot I ended up in hospital had a terrible time got operation ilestomy stoma and I have a bag. Hope you get sorted and things go well.

Hi well since I replied last time things got better for a while, but now I'm feeling worse than ever, I've lost more weight, I'm pretty sure I'm dehydrated, no energy, can't eat, even liquids are a problem because they just make me feel bloody sick all the time, so I feel a bit like I'm fading slowly away, I took my methatrazate on the weekend and I'm pretty sure that has made things worse, as for my other medications I've not been able to take them either and I know that's a mistake but I'm in a bit of a mess, sorry I'm venting but I'm feeling so god blame lost

hi again Lynne,

Just about to go to bed and saw your post

So sorry to hear you so desperate, I don't know for sure but when I was on methatrexate I was very very fatigued, tearful and had a few episodes of rage....really not like me, perhaps you should get onto doctor, it doesn't seem to help (presumably you have been on a while) and you are not managing the pain. You need help, don't try to be brave, I think you have struggled long enough. get someone to go with you who knows what you aregoing through!

Take care and hope you get some sleep.

Hi Lynne,

So glad you are getting help, although I appreciate more hospital is not home.

Hang in there I am sure things will improve, you must be a hell of a tough cookie to have coped this long.

Keep us posted and good health xxx

Hi Lynne,

     I'm so sorry you are feeling so ill! I have had crohn's for 52 years since I was 14 and have had 1 exploratory surrgery to detect crohn's, three resections due to obstructions and the most recent on was in March of 2015. The pain was so severe just above the bellybutton and to the lower right ileum.  I was throwing up my own stool and at that point the ambulance was called. I was taken to the hospital and had an ng tube put in, Ivs, had xrays taken and then finally admitted. My surgeon came in four days later and said I needed surgery the same day. I was in the hospital for seven days. Recently went to my GI and he sent me for ct scan for I had bad pain in the same area as I had the surgery. The test revealed that I had inflammation and a narrowing in the same area.. Was not happy with that news. Don't know why this inflammation returned so quickly and neither does my GI. I know I have adhesians also for they come right after surgery. Right now I am on Pentasa but it doesn't seem to be working for me. My GI wants to put me on a medication called mercaptopurine a 6MP. I don't like any on these medications for the side effects are terrible. We have this terrible illness and the medications we are on are horrible with side effects.

   Crohns' since 1963, medications: pentasa 500mg 2/4xper day, vitamin d3,2000 iu per day, dha 600mg per day, cq 10,100mg per day, bentyl when needed.

 The only thing that keeps me going after all these years is my Faith, With  God All  Things Are Possible. Hope this will help you.

 

Hi Lynn,

 So glad your feeling better hope you get out of the hospital soon. Thank you for your concern. I am so glad to be on this forum where we can share with others.

    God speed!!

Hi Lynne and Rose

Relieved to hear the hospital have been able to help and you are feeling a bit better. I am happy that you feel more positive too, hopefully home soon.

Rose, I am sorry to hear that the inflammation has come back so soon after your op, that's so disappointing...I have realised that your post indicates that you have had crohns since 14 !!! You must be very strong !

I feel very wimpy having read your posts you are both so brave.

I have my stricture op date 27/10 ( barring cancellations) and currently managing on no meds other that paracetamol when pain gets bad.

Staying positive and trying not to assume all will be better after but you gotta stay positive.

Sending get well wishes to you both xx

Hi Rose and Lynne,

Yes, when I'm feeling really bad and in pain I just want to be on my own too...a bit like an animal crawling back into my cave! Also have lovely hubby but I think the difference between good and bad days confuses him. I think we are tough ladies and when its at a low level we are so energetic as so happy not to be dealing with pain and symptoms we go hell for leather knowing that sooner or later gonna get a flare.

I was diagnosed about 18 months ago but probably had mild symptoms and a few nasty flares over last ten years so lucky really, and in awe of you ladies !

I have been trying deep relaxation exercises, which have helped a bit and lavender drops in bath and on pillow, but I suspect you guys have tried just about be very thing . good luck and best of health xx