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I had MVD for TN in Jan. 2017 and that took care of the TN pain which was wonderful but after I was weened off the medication I had pain in the back left side of my head, the same side as the TN. After going to PT, acupuncture and massages, I was diagnosed as having Occipital Neuralgia. I had a nerve block which only lasted a few hours, pulse radio frequency ablation that didn't help at all and am back on the meds that I took for TN...ugh...the neurologist referred me to a neurosurgeon who recommends C-2 ganglionectomy which deadens the nerve completely. Has anyone done this or had ON after MVD surgery? I'm scared to have another surgery but can't live with this pain. It feels like my head is rubbed raw when I touch it, very difficult sleeping since I can't lay on that side or even on my back without pain, I get shooting stabbing pain at times when I'm not even doing anything. The TN pain was unbearable but this isn't any easier to handle. Thanks for any input. Mary
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