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Oesphagus

Posted , 6 users are following.

joyce6460
joyce6460

Has anyone been diagnosed with oesphageal lichen planus if you have how was it diagnosed i.m being treated for acid reflux but I have oral lichen planus and wonder if there's a connection

0 likes, 11 replies

11 Replies

  • penny33699
    penny33699 joyce6460

    Posted

    Hi, yes I've been diagnosed with lichenoid oesophagus or oesophageal lichen planus and have it in my mouth.  Only way to diagnose is with biopsy.  It's very rare and may get missed.  Acid reflux has nothing to do with it and I reacted badly to the medication when they tried it on me - lansoprazole/omsoprazole.  I didn't have acid reflux at all, it is just the first thing they think of.

    You need to ask them to do that biopsy.  Good luck!

  • joyce6460
    joyce6460

    Posted

    Thanks for your reply I went for an endoscopy last month and asked the doctor if there may be a connection because I have oral lp and he said no straight away didn't even give me chance to say anything else. I have been on lansoprazole but I also don't get on very well with the medication. They took biopsies but do you know if they test them for lichen planus if they don't can I ask them to . The results of the ones I had say inflammation. It took years to be diagnosed with it in my mouth they kept saying it was thrush I also have it vaginally which again took ages to be diagnosed .

  • penny33699
    penny33699 joyce6460

    Posted

    I had several misdiagnoses before the biopsy.  The consultant was very surprised by the result and said that it was extremely rare and clearly linked to OLP in mouth.

    You need to ask them to do a biopsy to specifically look for LP I'd say.  They might not have seen it before.  Clearly the inflammation is caused by something.  

    You are your best advocate and need to keep pushing them.

     

    • joyce6460
      joyce6460 penny33699

      Posted

      Hi penny I was just wondering what they said was wrong with you before they found out what it really was , and are they giving you any treatment, if they are what is it and is it helping . What were your symptoms that made you go to the doctor 
  • Gillian1956
    Gillian1956 joyce6460

    Posted

    Hi joice I'm have LP of the vagina areas and I to am wondering if I have of the oesphagus as I've had butnnng and soreness for the last five years I only resently had a endoscopy done o did mention. I had KP bug I bet I haven't been checked for it do the next time I see my dermatologist I will as her about it I'm taking PPI medication but it doesn't really help but eating a bland mostly doge foods helps a little what are your symptoms 

    • joyce6460
      joyce6460 Gillian1956

      Posted

      I to eat a very bland diet so as not to make my mouth sore . I was having difficulty swallowing that's why I went to the doctor the endoscope showed inflammation and an ulcer I think the ulcer must have healed cos I don't feel that now but sometimes when I swallow I can feel it going down I think some of it is due to anxiety which is made worse by having to wait for results etc I have to see the doctor next week so will try and get some answers . What are your symptoms ?

    • Gillian1956
      Gillian1956 joyce6460

      Posted

      Hi I get burning and soreness in the gullet and throat and a feeling of lump in throats  sometimes I agree anxiety makes it all worse I eat bland foods and nothing to sharp or hard and only drink cooled down decaf eat and food left to cook otherwise I sufffed really bad from burning and soreness 
  • bob701
    bob701 joyce6460

    Posted

    I have OLP as well and i have started having acidity issue off late. Never thought there might be a connection. How did all start and how was it diagnosed?
    • joyce6460
      joyce6460 bob701

      Posted

      I have had reflux symptoms for quite a few years but I just took gaviscon and it was fine but it went worse a few months ago and that's when I went to the doctors. The oral lp was diagnosed a few years ago I had a biopsy taken to confirm it . But I haven't had a diagnosis for oesphagus yet the doctor doesn't seem to think there's a connection but after reading other threads on here I think there could be .what are your symptoms ?

    • bob701
      bob701 joyce6460

      Posted

      Hi, Mine is a very mild form of acid reflux and indigestion. For now Tums is working. It has just been a month. I am continuing to monitor it. Will keep you posted. Thanks
  • penny33699
    penny33699 joyce6460

    Posted

    My symptoms were difficulty swallowing.  Had an endoscopy and was found to have a narrowed oesophagus.  The gastroenterologist did a stretch with a balloon and took a biopsy.  Originally, he diagnosed eisinophilic oesophagitis but the biopsy showed the very rare lichenoid oesophagus.  Since then I've had a further stretch and have been able to swallow relatively normally for the last 18 months.  I'm not taking any medication but following a largely vegan diet with plenty of flax oil and vitamin d. I do eat fish.  I have to avoid chilli, which is really painful but apart from that I'm managing OK.  I've never had any problems with acid reflux.

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