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I am hoping someone can help me out with debilitating symptoms that have been going on for almost 2 years. Just some general info about myself: F, 26 years, normal weight, vegetarian for 20 years. I'll try to keep the story short but there is a lot to explain, so here goes nothing...
My health problems started in the beginning of 2016 where I would feel off balance/dizzy mainly when walking which got worse when I would try to look around a lot. The feeling exactly how I felt is difficult to describe but included feelings of swaying, sometimes caught by surprise of my own movement, weak legs etc. Went to the doctor, did some usual tests and blood tests (whole blood count, iron, thyroid, liver, kidney etc.) and everything came back clear, but slight tachycardia at the time (90 bpm rest or so) so I was sent for heart tests (echo, stress test, ecg's, 24 h Holter) but nothing was found so my heart was cleared at the time. I should mention here that I did mention being a vegetarian and questioning my B12 levels, so these were checked too, but the doctor diagnosed them as being fine (which turned out to be a misdiagnosis 6 months later, at levels of 189...).
Time went on, about 6 months of walking around with these symptoms, when things really got worse and I would feel very faint at times, super unbalanced when walking, very anxious, sweating a lot and chest tightness. Revisited the doctor, all the tests again were fine, except my B12 which dropped to 98 at the time. Was put on oral cyanocobalamin (4mg/day for 2 weeks and from then on 1mg/day).
Despite having B12 medication things regarding my balance remained the same or got worse at days. I think it is during this time of all the worrying that I also developed an anxiety/panic disorder. Brought myself 3 times to the ER thinking something was massively wrong, because of my off balance feelings, extreme feelings of being uncomfortable in my chest (very warm, tight, heart palpitations often happening after lunch). ER did the usual tests and found nothing but high heart rate which was attributed to it being a panic attack.
That brings us to now, where I am seeing a psychiatrist for my anxiety disorder, but I believe there is a medical underlying condition that is not detected yet. During the last year I got too scared to work out thinking my balance got worse. Recently though I forced myself to go back to run 5k's which I loved doing before all of this happened. And this is when I got surprised: When I run I don't notice ANY of the symptoms. My body feels strong and I am able to pull of a 5k in about 26 mins, which is pretty decent for me considering I have not worked out in about 10 years. However, as soon also here when I am done with the run and start walking again this horrible off balance feeling is back! I can't stand this any longer. The off balance feelings I feel are always there but the severity degree is very dependent on the day or time of the day. Usually a lot worse towards the end of the day and also in the weekend which are often accompanied with some weird eye strain/headache. Also seems that when I have had bad anxiety/an attack it takes a toll on my balance that requires a couple days to go back to more normal levels, truth is the balance issues are always there in some degree or another.
I am just hoping to find answers to what could be going on. Could it be permanent damage from my B12 deficiency, of course also scared of MS or some other undiagnosed disease or could it really all be part of my anxiety disorder. Are there any of you that can find themselves in these symptoms/have any tips/advice?
I'd greatly appreciate any input as it seems I can't enjoy life like I used to and want my old normal carefree life back...
Thanks a bunch
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