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I have been off my RA medication for 2 months now. Since at my last 2 appointments with the RA specialist when he said I was doing well, had no swelling and therefore could presume I was in remission. No blood tests were done at the time just results from last ones I had done were taken into account. So a couple of months ago while seeing the RA nurse having given it a lot of thought I decided to ask her if it would be ok to stop taking the hydroxychloroquine (Plaquenil).She said it would be ok but if I was to have any problems or get worse to get in touch and I could go back on. She did say people who come off their meds usually end up going back on them within 5 months which I found disappointing to hear. If I remain as I am I'd like to think I could stay off it forever.I have made a few changes health wise such as exercising a bit more, losing weight, no caffeine and cutting out a lot of rubbish I was eating. I've never felt better. Get far fewer headaches now. I do still get very tired and have the odd painful joints but nothing I feel I can't manage. I just have a niggling worry that my positivity at the moment is perhaps blinding me to the possibility of future joint damage. Has anyone come off of their meds and remained off them? Any feedback would be useful.
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