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I was diagnosed with HSP in 2013 at the age of 38. I had all the typical symptoms including rash, joint pain/swelling, severe abdominal pain and kidney involvement. I was treated with high doses of Prednisone which helped things settle down but I'm still unable to come off of them completely and constantly feel like crap. I'm looking for other adults like me, who are struggling, to connect with and compare notes.
On a side note: Has anyone else been diagnosed with another auto-immune disease at the same time or not long after their HSP diagnosis? I had auto-immune Thyroid disease about 16 years ago but am wondering if I have something else going on now too.
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