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Hello everyone! Great to find at least one group that is composed of actual Gilbert's patients. I just thought I'd post a short note with my symptoms and story.
I'm 63 and retired. I am a few pounds overweight (according to my BMI),. I eat very correctly and exercise daily. All in all I am considered to be in great shape for my age. However, I have complained for several years about a variety of problems to my doctor. Cold hands and feet, cronic fatigue, sore muscles (mainly back). I would either get a test which would come back normal, or be told to "suck it up", it is just part of getting old.
This year I bitched to my doctor, listed the symptoms as a group. He did a bunch of blood tests, then told me I had Gilbert's, it was not serious, and I could go home and look it up.
It quickly seemed obvious that since there is no money in it, and no "cure", noone has really looked at this issue closely, It does not seem that anyone has ever done a study of sufferers. That is why finding a group like this is important.
While I can't do anything overt about the problem, I can at least stop blaming myself if I am fatigued or sore, or my hands and feet are freezing in our Canadian winters. This helps give me some piece of mind. And despite the symptoms I am doing as well as I can. The rest I "suck up".
I am experimenting with a variety of over-the-counter items. I have found that a daily suppliment of magnesium helps with my energy levels and I recommend that. I am experimenting with iron, as I eat mainly vegitarian and doubt I get enough in my diet.
Please keep posting your experiences to the group, particularly if you find anything that seems to mitigate the symptoms.
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