Olive oil for ls
Posted , 8 users are following.
i am going to try the olive oil as a moisturizer. how has it worked for other people. has it helped.
0 likes, 14 replies
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Notes on Olive oil for ls
mary_lou60460 gloria60977
Posted
Hi Gloria
I use olive oil. I feel its a great barrier when im having a flare up and not greasy. I really like Coconut Oil for a moisturizer better.
beverly52803 gloria60977
Posted
Tried it once. Prefer coconut oil, but I don't have e reaction to urine so don't seem to need a barrier.
Su02 gloria60977
Posted
I tried olive oil but castor oil works for me. Alot of ladies on her swear by it so its always worth a try
jen86183 gloria60977
Posted
It really stops itching Gloria and keeps the area soft.
sheila02965 gloria60977
Posted
Hi Gloria, my urologist recommended me trying the vitamin e suppositories. So far after a weeks use j have less burning and no itching at all. I use one at night after I shower and one in the morning. Make sure to wear a pantie liner for about the first hour. It tends to get a bit greasy. I am willing to try anything with in reason for comfort. I have an appointment in a couple weeks with a LS specialist at UNC in chapel hill. Im going they give me good news regarding LS. Good luck and keep us posted. I try to get on her as often as I can to read posts and replies but being back in school full time after being out 32 years and watching my grand daughter while my daughter in law is deployed. Shhhhew my hands are full.
gloria60977 sheila02965
Posted
thank you all for your input. i dont have itching thank GOD! never did and have been blessed that all seems to be going well for the last 5 years. Have been using clobetasol once a week since getting it under control but have lost most of my right labia minora. I have a small slit and I had read olive oil was a good moisterizer. i will let you knowhow it works.
beverly52803 gloria60977
Posted
gloria, I also don't have itching which seems unusual according to the majority of people posting. But I now have a mild "buzzing" sensation (best way I can describe it). Another woman on the forum said a specialist in Houston said that sensation was active LS and to use the steroid on it (though my gyn said there were no visible signs of a spread to the hood which is where I feel it). I have recently been using the steroid there, but am very paranoid about using too much. Wish there was more factual info on the disease and treatment. Everyone seems to be winging it. I am 9 months into this and am encouraged you've gone 5 without major problems.
beverly52803 sheila02965
Posted
sheila, I had been using Vit E caps internally for atrophy, but finally succumbed to using hormone cream. Are you using vit E for internal itching or external due to LS?
I am using mid level steroid ointment for the LS along with coconut oil (which I have been using for over a year) and sometimes vaseline as my gyn said due to it's neutral PH was good for any soreness caused by the hormone cream (and that is usually caused by the cream base).
gloria60977 beverly52803
Posted
I know how you feel Beverly. Even my specialist doesn't have all the answers. It can be confusing but I guess we are learning even the docs. I am using the clobetasol once a week as specialist did decreasing. Started twice a day for 2 weeks (gyn started that) and then got in to see the specialist. She had me decrease to one time at night twice a week and then after 9 months she had me do once a week. Have been on that for a about three or four years now. I don't like using the steroid cream but have come to terms with it as I will probably be on it forever and no major problems just a little split once in a great while. Actually the one that is healing now is only the second one i have had. It can be discouraging but know that everyone on this forum understands and is willing to talk to you.
Good luck and God bless you. By the way if you can try to find a doc that specializes in this it may be beneficial. First gyn I went to had no idea how to treat this. that is why I found a specialist.
sheila02965 beverly52803
Posted
Hi Beverly, I am mainly using the vitamin e to help with moisture. I stay so dry and because my skin is so tight or burns and occasionally itches. I have been using organic unrefined coconut oil for about 3 years now. I love it but I needed the extra moisture the vitamin e provides. I use my clobetasol 1-2 month to keep things at under control. I really wish they would focus more on LS cure this is awful to live with.
beverly52803 sheila02965
Posted
Sheila, do you use Vit E as a vaginal suppository or externally? I had used it internally in the past. Seems it would be very thick to use externally.
beverly52803 gloria60977
Posted
gloria, my gyn is a vulval skin & menopause specialist and has many LS patients. I lucked out there as I didn't know this before seeing her. I can't imagine what another Dr would prescribe other than a steroid which I'm already using. I just discovered there is a Functional Medicine Dr where I am for the winter. I may go to see him (assuming he takes my insurance) to see what kind of supplements he might think would be helpful or necessary.
gloria60977 beverly52803
Posted
It is good you have a vulval specialist. That is who I have also. Other gyn i saw first told me to use the clobetasol twice a day for two weeks and then not to use it unless i had redness or itching. he also said he didn't need to see me again unless i had a problem. went home and looked ls up on internet and decided right then i needed to see someone who had knowledge concerning this disease. Thank God I found the one I have been going to since. Please let me know if you see that other doc and what he has to say.
beverly52803 gloria60977
Posted
gloria, if I do see him I will start a new thread with both* functional medicine and LS* in the topic as there are so many different conversations on LS now. First I have to see if he takes my insurance . I believe they do tests that insurance co's don't cover, so that will be a factor as well.