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Im about to crawl out of my own skin...the sever pain from this flare up is beyond a 15 in Pain numbers, I started drooling on wed, by Thursday night my lips, tongue were swollen and buzzing all the tissue inside my mouth was inflamed with white lace marks along with open sores on inside of my cheeks and along sides of of tongue and really all over, can't hardly talk it hurts so incredible bad. I went to bed thursday night after trying a pudding which my mouth hurt so bad I couldn't geit down, so all day friday and sat Ive had sips of water, I have been in bed for over 2 days, sleeping taking beadryl, lorzapan,. diludid and advil, also applying protopic to the inside of my mouth 4 times a day. all I could do and only wated to do is sleep the pain away. My sister came over later tonight and took me two to ER Hospitals, we sat for hours at the firs then went to anther and got right it, the gave me a shot of steriod and 4 20mg pills for the next f couple of days. also prescribed some lanicane swish and spit, which only numbs it for a few minutes.
The doc that saw me kept saying you know we cant do anything, there is no cure, you will just have to learn to live with it. Terrible bed side manner.
Any How I would appreciate any of the suggestions you all might have, I have seen post with idea of cocanut oil, msd or silica. I hate using the protopic as it could speed up the process of cancer. I need help peeps, even drinking water burns and is hard to get down, I choke up my pills all the time.
Helpless in Poplar Grove, IL
Thank you , Teresa
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