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OLP of the erosive variety

Posted , 6 users are following.

Soocee67
Soocee67

I was diagnosed with this 18 months ago. I was referred to hospital for biopsy which was traumatic. The doctor held my tongue and stuck needle straight in. The pain was so severe I passed out. My gp commented that he thought my treatment was brutal and unacceptable.

I was then referred to a different local hospital (we live between the 2) and was treated with kindness. I had further biopsy which was painful but bearable. Unfortunately this doctor now wants to refer me on as steroids are not sufficiently effective in controlling my OPL.

I have an appointment this week at Bristol Dental Hospital and am terrified of yet another biopsy. I am also frightened of being experimented on by students (not in general but in this instance).

has anyone any experience of this hospital? 

I don't know anyone else with this disorder and feel quite isolated 

3 likes, 39 replies

39 Replies

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  • z77498
    z77498 Soocee67

    Posted

    Hey Soocee67,

    For better or for worst, I've enjoyed reading up on your experiences w/ OLP. 

    I was diagnosed two year ago with it (and unfortunately I am only 21 right now, and it is bizarre for someone my age to have it). 

    I've tried a few oral steroid creams, but my OLP adjusts to it quickly and it becomes relatively ineffective. A good tip however is too make to continue to brush and floss regular since plaque buildup can contribute to further errosive OLP. Next week, I am trying a new laser treatment therapy that is suppose to help reduce inflammation. Not sure how it will turn out... hopefully well!

    Good luck with you though! 

    • z77498
      z77498

      Posted

      Couple of typos/grammar problems in there, but you get the jist! ^^
    • rajkiwi
      rajkiwi z77498

      Posted

      Oral Hygeine is a must...though when the mouth is very tender and you have erosions on cheeks, lips etc it can be difficult to stick in a baby's brush. 
  • karen41728
    karen41728 Soocee67

    Posted

    Hi soocee67

    Just wondered how your getting on Xx

    • Soocee67
      Soocee67 karen41728

      Posted

      Hi Karen

      Improving slightly with regime of doxycycline, clobetasol and topical steroids.

      for asking. Also have a mouth splint to help reduce friction on my tongue. I've had a lot of bother with it though as it has been rubbing on my gum line.

      Day at a time really, how are things with you?

      Hope you enjoyed Christmas and managed to enjoy your dinner.

    • rajkiwi
      rajkiwi Soocee67

      Posted

      A day at a time indeed. Its painful, troublesome and time consuming disease. Hope you have a better new year. 

       

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